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Replies to "That is so kind of you @santosha Since school has ended for the summer her moods..."
Epilepsy & Seizures | Last Active: Sep 7, 2025 | Replies (43)
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That is so kind of you @santosha
Since school has ended for the summer her moods have improved noticeably.
She had one night where she missed a dose of her medication and the next morning she had some myoclonic jerks and was not herself for a few hours. To me this was a good reminder of how well the medication is working.
I think that she may be adjusting with a better ability to regulate her moods in general, but as an almost 15 year old she has teenager moments. As the weeks have passed I think she is adjusting to life with epilepsy. As someone with MS myself I can empathize that living with a chronic illness is a process and every day can be different, the unknown is definitely the most challenging part.
Replies to "That is so kind of you @santosha Since school has ended for the summer her moods..."
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Hello @sg325
I'm so glad to hear your daughter's moods have improved since school ended and that she's learning to adjust to life with epilepsy. This brings such a big smile to my face—thank you for sharing this update!
You're so right that living with a chronic illness is a process, and every day can be different. I try as much as possible to focus on the present moment rather than dwelling on past seizures, which only brings me fear. I also find it very important to celebrate every step of progress in this journey—it brings me motivation and courage.
So as not to forget to take my medication, I make use of alarms on my mobile phone. It has been effective. Earlier this year, @jakedduck1 started the following discussion: "How do you guys remember to take your medication?" — https://connect.mayoclinic.org/discussion/how-do-you-guys-remember-to-take-your-medication/. Here, you can find suggestions from other members for avoiding missed doses.
What do you think has contributed most to this improvement in your daughter? Is it related to a change in medication dosage, lifestyle adjustments, support from a psychologist, or perhaps just having the summer break from school stress?