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Juvenile epilepsy

Epilepsy & Seizures | Last Active: Sep 7, 2025 | Replies (43)

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Profile picture for Chris Gautier, Volunteer Mentor @santosha

Hi @sg325, @kymill, @hassankusow
I just wanted to check in and see how you and your children are doing lately.

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Replies to "Hi @sg325, @kymill, @hassankusow I just wanted to check in and see how you and your..."

That is so kind of you @santosha
Since school has ended for the summer her moods have improved noticeably.
She had one night where she missed a dose of her medication and the next morning she had some myoclonic jerks and was not herself for a few hours. To me this was a good reminder of how well the medication is working.
I think that she may be adjusting with a better ability to regulate her moods in general, but as an almost 15 year old she has teenager moments. As the weeks have passed I think she is adjusting to life with epilepsy. As someone with MS myself I can empathize that living with a chronic illness is a process and every day can be different, the unknown is definitely the most challenging part.