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I’m sorry you’re suffering. I too have Long Covid, since December of 2022. My symptoms have gotten better since having the virus, but I believe my first symptoms began after the very first Covid Vaccine. I detected a metal taste in the back of my throat after receiving it. It wasn’t until I actually caught Covid, the virus, that I lost my taste and smell on day 2 of the virus. I also had the usual symptoms, balance issues, stuttering, body tremors, which I still have on occasion if I push myself too hard, fatigue which is much better. I still don’t have my taste or smell, but my other symptoms are better. I also went to the Northwestern Covid Clinic and saw Dr. Koralnik, the Chief of Neuro and Infectious Disease and he told me that I would not be getting my taste or smell back if it’s been over a year! I’m choosing not to listen to him! Is that the person you saw? I don’t know how 2 people with Long Covid can be told different things? I think they’re just guessing at this point, which doesn’t set well with me. We are tough like you said, but it’s getting very old!

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Replies to "I’m sorry you’re suffering. I too have Long Covid, since December of 2022. My symptoms have..."

Kimbauet -
Could you tell all of us more about your experience with Dr. K at NMH?
1. Meds recommended or
administered?
2. If so, which one(s)?
3. If not, why not?

The ONLY med I’ve heard that Dr.K uses for LC is Amantadine, but that med has a long list of very un-
pleasant side effects - maybe worse than LC symptoms.
You say your symptoms have gotten better! How much? Which ones? Any idea about why. Please tell us what you can about your improvement. So many write tif-bits about their experience with LC but leave us in the dark about how and why they got better.
Some say low dose Naltrexone helps but it also has brutal side effects. Those who have reported using it say nothing about the side effects, if any. We need to hear all, not just rid-bits, if you are willing to take the time and make the effort.
Thanks, and best wishes, Kim.
Stuart