← Return to Roles of seeing an epileptologist and lifestyle changes for epilepsy

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Profile picture for Chris Gautier, Volunteer Mentor @santosha

Hi @royanthony,
Congratulations on 13 months seizure-free! That's wonderful news, and it sounds like you've found a combination that's really working for you. I'm so happy for you! 😊
It's amazing how much lifestyle changes can impact seizure control. I've experienced similar benefits from lifestyle adjustments myself.
It must be bittersweet to transition from a neurologist you've worked with for 16 years, especially one who helped you achieve such positive results. Having 13 epileptologists nearby is a valuable resource, though.
Do you already have an epileptologist at this hospital in mind? I'm curious about what criteria you're using to select one from the 13 available options—that's quite a selection to choose from! Perhaps your neurologist could help you with some recommendations before he retires? His insights about your specific case and what has worked for you could be invaluable in finding the right fit.
Best of luck with the transition!

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Replies to "Hi @royanthony, Congratulations on 13 months seizure-free! That's wonderful news, and it sounds like you've found..."

I appreciate your comments here. The 13 is the 1st in almost 30 years. Your suggestion on asking my present neurologist is the way I'll go. No, I don't know the name of a epileptologist here in this area. I'll address that with my present neurologist, as well. My present neurologist has been a blessing. Over the years I know he spent hours of time dealing with my health insurance company as each year he's had a ton of insurance paperwork to complete so I can obtain my Brand name meds. I feel comfortable stating that he likely did not get paid for some of this time. Generic meds don't work for me, as confirmed partially by my being able to reach the 13. In summary, I'll use your suggestion and yes, for me I'll experience some personal emotion.

@santosha I had my final visit with my 16 year patient / neurologist on Oct. 31st. As I think I may have mentioned, he is retiring. We both knew what each other wanted to share, meaning a hug like a quarterback and a wide receiver, one of which would be retiring at the end of the season. You had to keep it professional though. We ended the visit with both of us knowing that we had a true, trusting camaraderie between each other over a period of 16 years. Tough to deal with for me. He's got to feel good though as I am now seizure-free for 16 months. He forwarded my files to an epileptologist, hoping she would add me as a patient. She denied it. So, I'm going to stay with the same Baptist Health group. I feel comfortable though because his assistant went out of her way to say don't worry, the doctor wanted me to be taken care of. He will be missed.