← Return to Anyone with Retroperitoneal leiomyosarcoma had a genomic analysis?

Discussion
Comment receiving replies
Profile picture for ctflyr @ctflyr

Hello....my Wife was diagnosed in Feb 23 and had been NED for nearly 2 years. Early scans showed a few very small lung nodules, which were too small to biopsy. Over time, in late '24 and early '25, a nodule was large enough to test. It was positive for sarcoma...thus the rLMS had metastasized. We opted to put off any drastic chemo and chose a biologic drug Votrient, which has very manageable side effects. Scans continue every 90 days and we hope for "stable disease" or improvement which has shown in recent scans. We hope that continues but understand this cancer isnt predictable. Wishing you well with your diagnosis and treatment! ❤️ Use any and all sources to educate yourself on rLMS and treatment options. Find a sarcoma specialist or sarcoma center near you. Blessings to you on your journey with this illness!!

Jump to this post


Replies to "Hello....my Wife was diagnosed in Feb 23 and had been NED for nearly 2 years. Early..."

@ctflyr hello I just read your message, how is your wife doing? I was diagnosed with rLMS on November 2024, tumor was removed in December 2024, with no further treatment. I have been NED and my next scan is in June. There’s a small nodule on my right lung that’s too small to test. The oncologist keeps saying that it’s not abnormal for people to have small nodules in their lungs but after reading your post, I can’t help but to feel a bit uneasy. How did the treatment work for your wife? Did she have any symptoms related to her lungs prior to the diagnosis? I hope it’s all well and I’m looking forward to hearing from you.