← Return to Hesitant to begin drug treatment for my osteoporosis

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Profile picture for lilac2025 @lilac2025

Hi mic1953. I sympathize with you as I was diagnosed this past April with osteoporosis. I'm still recovering from the shock but have and will be taking the more holistic approach, as you are doing. (diet geared towards bones, strength training/impact exercises) I had to reply because you have EVERY RIGHT to request YOUR DEXA report and UNDERSTAND it. It's YOUR body! Just FYI, the DEXA scan looks at the Femoral Neck of each Hip and the Lower Spine. They do this because these are the areas of the body that over time have shown are most prone to fracture as bone density decreases with age (as it does with EVERYONE!). The DEXA I had didn't include the wrist, but I've heard some do.

For the lower spine, they list it as L1, L2, L3, L4 and then provide a TOTAL #. Each lumbar spine is followed by a BMD number (Bone Mineral Density) and also includes a T-score. You should ask your osteoporosis specialist to show you the report and EXPLAIN it to you. I find it rather confusing and even confounding, as they come up with this score based on the HEALTHY BONES of a 30-year old! Then, they calculate how far you "deviate" with that standard deviation from the NORM. That's the T-score part. When I asked my doctor for the score to show how you compare to those your OWN age, as in, also the aging population (!!), she asked the radiologist, who scolded her for asking! They only give that out (I think it's called the Z-score), if you do NOT have osteoporosis. No fair! In any case, my lower spine is bad -- I do know I have some disc degeneration, so I often wonder if that's related. My doctor didn't know. I've done all sorts of core and spine exercises over the years, so the muscle will protect the bone. That is critical. Make sure you add strength training to your routine, 3 times a week. I went to a physical therapist and she put me on a program with 11 different exercises. I highly recommend you explore that. I lost my confidence at the gym after my diagnosis. I was so afraid I'd break a bone. I'm not afraid any more. In fact, I had a good workout today at the local YMCA fitness center. Muscle protects the bone. Balance exercises are good for you, too.

I wish the DEXA scan considered all the other bones in the body. Some bone experts say that bone density isn't the same as bone quality. The TBS, also known as Trabecular Bone Score analyzes the bone for bone quality using software. So you also will get a TBS score.

I wish you all the best with your bone and muscle strengthening program and lifestyle. I know it's not an easy diagnosis to deal with. I've been upset about it. My world has never been the same, but I'm coping with it. My doc said I have two years to turn this around without turning to medication. She believes I can do it! (she's such a supportive doctor!). Maybe because I'm on the younger side of "elderly" at 65 she's giving me this time? She knows I've been going to the gym for over a year - had taken a break from it during the pandemic - but before the pandemic, worked out fairly regularly for many years. I have to get another DEXA two years from now, and then we go from there. I have some other issue that may have contributed, but I won't get into here. I will say it relates to whether or not the calcium from my diet & supplementation was reaching the bones. After many months of research and even taking the CTX and P1NP bone marker tests so I know where I stand NOW, at the beginning, I finally started taking Vitamin K-2 on July 1st. That's a whole different topic. Check out that topic online. Vitamin K-2 as M-7 helps direct the calcium to your bones and not to your arteries. (another topic!) I did a lot of research on that before I made my purchase and started taking it. We'll see if that's been part of my problem. . . jury it out!

All the best to you. Check back and let us know how you're doing! Try to stay positive. I hope you found this helpful in some way? I've put so much time & energy into all of this, I like to share what I've learned with others in the hopes I can help. We're all in this together! You are not alone! 🙂

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Replies to "Hi mic1953. I sympathize with you as I was diagnosed this past April with osteoporosis. I'm..."

This is both helpful and honestly, a bit overwhelming. These medications often have such strong and varied side effects, plus some have been around less than 10 years. I hadn't heard anything about Vitamin K-2 so I'll have to look into that. I stopped taking Tymlos because of the side effects. I exercise regularly and have started with small weights. I wish I had someone who I could go to (in person or virtually) who specializes in osteoporosis. After reading your post, I think you know more than the doctor I went to!

Thank you for your most informative response! You certainly have done your research!. I just don’t like the way doctors push drugs on a person…that’s what medical doctors do.

I live in a very remote area in northern Minnesota. We have a hospital, but it’s more of a pit stop if you have a major medical issue. For further testing we usually get referred to a health center in Minnesota 100 miles away
or North Dakota twice the number of miles. There are communication gaps between the three. Thus, my Dexa scan report fell somewhere in the gaps. I have reached out to no avail.

Anyway, I agree with everything you have said. I also have osteoarthritis in my spine and other degenerative issues. I know I have to exercise but I have been slack due to chronic pain. I have promised myself to work on this. Keep up the good work.

I take calcium, vitamins D and K.