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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 18 hours ago | Replies (7462)Comment receiving replies
Hi, my name is Karen and I suffer from chronic pain due to a TBI and I am disabled. I suffer from daily intractable chronic migraines . I’ve seen many neurologists and have been to the Michigan pain hospital for treatment, but nothing helped for over 39 years. I recently began seeing a pain specialist and he put me on Suboxone and started giving me Botox for my neck pain. I got a lot of relief at first, but they have come back full force. I am looking forward to meeting others are suffering like I am and understand what it’s really all about, because I don’t know anyone personally that has been through something similar. I hope we can help each other.
Replies to "Hi, my name is Karen and I suffer from chronic pain due to a TBI and..."
Hi Karen ! My name is Amie and I also suffered a TBI about 20 years ago. It's great that you are working with pain management. It's really important to let them know what works and what doesn't so they can adjust the meds. My Dr started me on Norco, Cyclobenezine and then added Oxy to the mix. I started seeing a neurologist who has helped me immensely. After the TBI I started getting killer migraines and she put me on a shot once a month for them plus Ubrevly which ended up being a godsend to me.
I hope are able to find some relief. Take care !
Amie
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Karen, Bless you sweet lady. I have not had a TBI, but, have had migraines since I was in
the 3rd grade. I do not have them daily (bless you), but, can have them 15 days in a row.
My Neurologist recently and recommended alternating Maxalt and Ubrelvy for migraines. Stay tuned.... Allergies, Sinus infections & Asthma tend to be triggers for me, lack of sleep, barometric pressure changes & certain foods that I have to stay away from. Sugar, Sodium & Caffeine tend to be culprits as well.
This humid summer has added to the list. Staying hydrated is very important for migraine sufferers as is taking Magnesium Glycinate as us migrainers tend to be low in Magnesium.
I also take B2 for migraines.
I cannot take NSAIDS, so that limits what I can take for pain for one along with the Triptan.
Honestly, Prednisone works the best for me, but, not a drug I want to have to stay on due to
the longterm side effects
.
I hardly have a migraine when I am on a Prednisone taper for upper respiratory infections.
Migraines are caused by inflammation, so that would make sense as to why the Prednisone
helps so much. I also have in the past taken a 4 day Low Prednisone Taper to break the migraine cycle when I have had one for several days in a row.
Have you ever tried the Magnesium Infusion or Migraine Cocktail? Also, my doctor
recommended that I come in for a Torodol Injection. I have never done any of the above,
but have heard they help a lot of folks.
I do find that soaks in Epsom salt in the tub, voltaren gel on my back, neck and shoulders (I have a lot of arthritis) and the Bedbuddy heat pack helps a lot.
I get a massage and it helps after I've had a migraine. I could not tolerate one while having a
migraine.
Praying for you to get some relief. I empathize and I care. I'm so sorry you have so
much pain. Blessings....