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Experience with Triplet therapy followed by IMRT and SBRT
Prostate Cancer | Last Active: Jul 23 6:55pm | Replies (11)Comment receiving replies
Hi, sorry for what you are going through.
I just made a post as I'm in a similar trajectory. My PSA is up to about 12 and we are not able yet to locate it for radiation, but I may need be headed for triple therapy too. Two hormone drugs and chemo. I too am apprehensive about the chemo and its effects. The ones I'm worried about is nerve tingleing in extremities and changes in taste that may be permanent.
I'm going to Mayo in MN for some more imaging and a treatment plan. I think Dr Kwon will recommend an aggressive approach.
I can't answer your question, but hoping for some of the same insight from others. Just what I have read in books and watched on Youtube with the PCRI.org videos. There is some really great information on pretty much all related aspects of Prostate Cancer. Cancer sucks 🙂
Cheers!
Bert
Replies to "Hi, sorry for what you are going through. I just made a post as I'm in..."
Hi Bert: I too am unable to find the cancer with PSMA pet with a 4.2 PSA. Have you been advised why with a PSA at 12 you still can’t locate it for radiation purposes? I also tried an Axumin scan which showed nothing.
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Briefly commenting as spouse supporting double chemo (Docetaxel + Carboplatin) and double hormone (Firmagon + Nubeqa). Round 5/6 of chemo tomorrow. As for the neuropathy, we do the icing of hands and feet, and he also sucks on ice, cold drinks starting 15 min before and throughout the infusion and so far have prevented neuropathy in hands and feet. We learned this from others who also had success. I would recommend to get the booties and gloves (Amazon) as the first time we used ice in bags and it was a mess. We bring the frozen items packed in ice bags in a small cooler to infusion days. Hope that helps!