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Arachnoiditis: How do you manage the nerve pain?

Spine Health | Last Active: Aug 3 1:49am | Replies (13)

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Profile picture for elilavonhansen @elilavonhansen

I recently underwent two cervical disc replacements and one lumbar disc replacement and the issue I was having in my leg, went from one in every 15 or 20 days to 24 hours a day and super severe. In diagnosing a Dura leak from the surgery and the consequential MRIs and CT’s they mentioned arachnoiditis, and we have looked into it in my lower back and I have pretty severe arachnids in my lower back. I am very new to this and prior to the surgery was a fairly healthy 45-year-old married guy. The results of their disc replacement surgery are good other than it seemed to have set off arachnoiditis in my leg and made things 10 times worse with the leg. All I can seem to find is pain management solutions and lifestyle coaching. Has anyone had any luck with Neuro hormones or any treatments that didn’t simply involve more pain medication. I realize I’m at the beginning of this road the many of you’ve been on for a lifetime. Let me know if there’s any physicians or facilities specialize in this or treatments that are available. I’m currently I have trouble walking if it’s over a significant distance and sometimes can’t hardly move the leg at all.

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I have found good help here. My doctors basically gave very poor advice which if taken would have caused worsening arachnoiditis. I chose gentle exercise, hormone treatment (what I could get) and faithfully taking 1.8 g MSM 2X day. In my research I discovered injections and that disk implant for pain would make it worse. I chose to do no treatments that invaded my spine. The website has extension information. I discovered everything that caused arachnoiditis I had had done. I am 84 and had failed back surgery at 24. Had discography with petroleum oil, had several spinal injections later on to try and get control of pain and immobility issues. I haven't had time to find a support group nor would there be one in person near me. I do spend a lot of time in prayer, mostly for others, and Bible study. At my age medications are not good for cognitive health so seldom do I take a muscle relaxer or narcotic pain pill though I have rx for such but very limited. The website is very extensive.

Research Dr Forrest Tenant. He has extensively studied Arachnoiditis. He has articles on the internet and books to purchase. My doctor put me on Indomethacin from Dr Tenant's protocol. That drug absolutely has to be taken with food. It is the only drug that helps my Arachnoiditis.

Google dr forest tenant. He’s passed away now but has tons of info. Also he has may videos on YouTube