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Newly diagnosed invasive ductal and lobular in right breast
Breast Cancer | Last Active: Aug 28 9:05am | Replies (85)Comment receiving replies
Hello,
I was diagnosed in January with lobular carcinoma with armpit and supraclavical lymph node involvement. I have had 20 rounds of chemo. I will have a single mastectomy and lymph node removal at the end of the month. I decided to just do a single as my oncologist said my other breast is healthy. Following surgery I will have radiation 5 days a week for 6 weeks. My reconstruction will not be until next spring. I will have a lift on the healthy breast for symmetry. It is a journey but just take each day with some grace. Best wishes - Corey
Replies to "Hello, I was diagnosed in January with lobular carcinoma with armpit and supraclavical lymph node involvement...."
Hello again,
Prior to surgery I had a PET scan and MRI with positive results (or so I thought). Everything looked that it had shrunk or was completely gone. After surgery both my oncologist and mastectomy surgeon were taken back as the cancer and the scans did not match. I had 22 of 22 lymph nodes removed - all cancerous. The two small breast tumors also showed cancer. I did a single mastectomy. My follow up with my Oncologist was unnerving he said that my type of cancer (Invasive lobular carcinoma) had a high rate of returning (50-75%). He said the reason was they cannot detect it well. I found this very upsetting - first the confusion between the scans and what was actually there. I asked him if this was going to take me out and he said most likely if it comes back. They said they were going to monitor it closely but if they can't detect it how do we fight it? I am not giving up just finding this very confusing. Has anyone else faced this type of situation? Thank you any and all feedback greatly appreciated. I will start radiation late September or October.
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Good luck with your surgery! Make sure you use applying cream right after each radiation treatment to prevent burn. I used fresh aloe vera. Check out the recommendations in mayo connect. They are very helpful. Radiation is the easy part of the treatments.