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Just Diagnosed with Tonsil Cancer - How to Treat?

Head & Neck Cancer | Last Active: Oct 19 1:27pm | Replies (76)

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Profile picture for niml @niml

Diagnosed with tongue cancer in 2024. Had 22 lympnodes removed and a glossectomy to rebuild my tongue. Followed by 30 radiation treatments. I had nasalpharangeal cancer in 2021 and had 39 radiations and 8 chemo treatments. The radiation has been brutal on my body. I have severe radiation fibrosis. It has prevented me from swallowing much. All I can do is a few sips of water at a time. Currently it is inflamed and I'm on steroids to see if the swelling goes down a bit. Needless to say I'm still on a feeding tube. It's a long road to recovery. If anyone has any more suggestions to help with my fibrosis let me know. I'm doing speech therapy and physical therapy and have lymphatic drainage 3 times a week.

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Replies to "Diagnosed with tongue cancer in 2024. Had 22 lympnodes removed and a glossectomy to rebuild my..."

@niml Hi .. I had treatment for nasopharyngeal cancer in 2006 - 35 rounds of radiation, and 5-6 doses of chemo. Had my feeding tube removed a few months after completion of treatment.
I thought I was doing 'ok' until mid 2020 - diagnosed with dysarthria and dysphagia and also severe neck fibrosis.
With swallowing - I have pretty mashed up food, and avoid eating out in public - due to issues with swallowing, and having to spit or cough up food that tends to get stuck in my throat.
With my severe neck fibrosis - I do neck and jaw exercises daily at home, and also go for therapy sessions every other week - hoping that this will help.
Keep well !!