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Thanks for your kind and thoughtful note, A.R., That’s great news that you’re feeling better. What a relief, eh? I have a few questions for you if you have some time to answer, hopefully.
First, does “feeling better” mean that you had a lot of fatigue but it subsided following Dr. P’s treatment?
My primary problem is daily fatigue, nearly all day.
Second, did you have weakness in your legs that improved with treatment?
I have a lot of that, and wonder if it results from inactivity or from the disease itself.
Third, did Medicare reimburse you for the $1000 cost of the blood test/diagnosis? Brian (at IncellDx) says Medicare will reimburse for that.
Fourth, did your doc say that other patients he treated with Dr.P’s meds had some success with it? There is NO testimony -other than yours - that his meds work. We all wonder.
Fifth, what was the cost of the treatment - meds and doc bills?
Sixth, did you have any unpleasant side effects?
Seventh, who was your doc? Brian gave me only two names in all of the Chicago area!!! They are overwhelmed with LC patients, as I can’t see one, Dr. Crevier, until October!!
Best wishes to you for continued recovery, A.R,

Stuart

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Replies to "Thanks for your kind and thoughtful note, A.R., That’s great news that you’re feeling better. What..."

P.S. I’m willing to travel to your doc if it’s not too far. Or, did you work with your doc virtually?

@stuartkjones4 My very first "what's that?" moment was when I was walking my dog and began experiencing a rocking sensation. Not major imbalance and never vertigo, but a consistent rocking sensation. I also don't feel as steady on my feet as I once did, but have never fallen. My major issue was PEM and/or Exercise Intolerance. I was also suffering from brain fog. I have always had a short attention span, but that span went from hours to what seemed minutes.

Within a couple weeks of my first (and last) booster I could no longer exercise. In my late 60s I had worked my way up to 45 minutes aerobic in the gym, split between elliptical and resistance exercises. Once LC hit me when I attempted exercise I would crash for most of the day and take very long naps and feel lousy to boot the rest of the day. So to your weakness comment, me too, and attributable to nearly zero exercise for years and as you well know that is not a good thing.

I have been lazy and haven't turned in my bills to Medicare yet, but intend to.

Dr. Pattersons team quotes 80% success rate. I am roughly $3,500 spent, blood tests and medications. No unpleasant side effects. My Doctor is Doctor John Bream in North Carolina. They have a very helpful and communicative nursing staff that answers your questions and requests by end of each day latest.

Best wishes on your journey.