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@stuartkjones4 best wishes at Mayo. I visited Rochester September 2023 and all tests indicated ‘normal’. Hopefully they’ve learned a few things and have had better results. I moved on to Dr Bruce Patterson and after 6ish months feeling better. His working theory is that symptoms are caused by vascular inflammation, cure the inflammation and the symptoms go away.

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Replies to "@stuartkjones4 best wishes at Mayo. I visited Rochester September 2023 and all tests indicated ‘normal’. Hopefully..."

Thanks for your kind and thoughtful note, A.R., That’s great news that you’re feeling better. What a relief, eh? I have a few questions for you if you have some time to answer, hopefully.
First, does “feeling better” mean that you had a lot of fatigue but it subsided following Dr. P’s treatment?
My primary problem is daily fatigue, nearly all day.
Second, did you have weakness in your legs that improved with treatment?
I have a lot of that, and wonder if it results from inactivity or from the disease itself.
Third, did Medicare reimburse you for the $1000 cost of the blood test/diagnosis? Brian (at IncellDx) says Medicare will reimburse for that.
Fourth, did your doc say that other patients he treated with Dr.P’s meds had some success with it? There is NO testimony -other than yours - that his meds work. We all wonder.
Fifth, what was the cost of the treatment - meds and doc bills?
Sixth, did you have any unpleasant side effects?
Seventh, who was your doc? Brian gave me only two names in all of the Chicago area!!! They are overwhelmed with LC patients, as I can’t see one, Dr. Crevier, until October!!
Best wishes to you for continued recovery, A.R,

Stuart

PPS. I’ve listened to many of Dr. P’s lectures and interviews and have faith in his theories but the folks at Northwestern Med LC Clinic in Chicano expressed skepticism about his treatment for some unknown reason. Another writer here said his visits at Northwestern’s
LC Clinic were useless, so maybe their skepticism was just competitive trash talk.