Does anyone have a solution to help manage Reclast side effects?

Posted by dingus @dingus, Aug 15, 2024

Does anyone have a solution to combat Reclast side effects. I had the infusion a year and a half ago and the side effects started shortly after I had the infusion. I still have weak legs, swelling in feet, pain in bones, dizziness (serious dizziness), cold sweats, tired all the time and nervous twitching in bones. Any suggestions?

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@gravity3

Why not a bone builder med like tymlos, forteo or evenity. Sequencing is very important with Osteoporosis drugs.. what was the rational for starting with reclast? Have you read any of McCormick s material.

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The Reclast was the only option the rheumatologist offered me. She said oral meds would be worthless for me being my numbers were so bad.

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@ladybugnc

My rheumatologist is the doctor who prescribed my Reclast infusion last November. My left arm has limited use and pain at least once a week. I will see her in September and I will certainly tell her my concerns. She had told me I would need another infusion in November of this year. I will have to think long and hard about this. This is the only medication I have ever had for my severe osteoporosis. I wish you the best in your decisions.

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Should you decide for a second infusion I would be interested in hearing your results, both bone density and pain level. 13 months and it’s at its worst in the middle of the night. All I have to do is attempt to roll over and the pain wakes me right up, sometimes 3-4 times a night

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@dannyandebbie

Should you decide for a second infusion I would be interested in hearing your results, both bone density and pain level. 13 months and it’s at its worst in the middle of the night. All I have to do is attempt to roll over and the pain wakes me right up, sometimes 3-4 times a night

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Are you able to take Tylenol or something for relief? Do you do any exercises? I am trying to. My GP thought I could have tendinitis in this arm. He obviously knows nothing about Reclast so he gave me some exercises to do and I go to my senior center once a week and do what I can in my classes. And I think it helps.

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@ladybugnc

Are you able to take Tylenol or something for relief? Do you do any exercises? I am trying to. My GP thought I could have tendinitis in this arm. He obviously knows nothing about Reclast so he gave me some exercises to do and I go to my senior center once a week and do what I can in my classes. And I think it helps.

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Yes, I go to physical therapy weekly and do my best to follow his recommendation. Some I cannot do because it makes it worse! I do find if I try to take a low key day my arms are worse at night; Tylenol don’t seem to help at all. I do hope that as time passes that the my body overcomes the Reclast. Never again will I allow another infusion!

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@dannyandebbie

Yes, I go to physical therapy weekly and do my best to follow his recommendation. Some I cannot do because it makes it worse! I do find if I try to take a low key day my arms are worse at night; Tylenol don’t seem to help at all. I do hope that as time passes that the my body overcomes the Reclast. Never again will I allow another infusion!

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Have you taken any other meds for osteoporosis other than the Reclast? That one infusion is the only drug I have had so I’m not familiar with any others that work and their side effects.

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@ladybugnc

Have you taken any other meds for osteoporosis other than the Reclast? That one infusion is the only drug I have had so I’m not familiar with any others that work and their side effects.

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No! Reclast is the only one I have taken. My endocrinologist wanted to give me an injection of something different and says Reclast did not give me the symptoms that I am experiencing and set me up with a rheumatologist, 01/29/2026. I know, there is not any medication out there that doesn’t have some kind of side effect and I’m already dealing with issues, dot need more! I just have to keep moving and try to move past my current situation. FDIC should Not allow this drug to be given with out better preparation! I, myself have issues with large amounts of fluid due to a constant burning sensation when I void due to bladded cancer from taking Zantac for years which limited my consumption of water prior to the infusion. My endocrinologist should have assisted me with this rather than just wanting to do the infusion. It’s been over a year now….the pain is constant during the day and worse at night or if I try taking a relaxing break for a day or more. Them more I move, the less it hurts but nights are awful! People really need to better review their options before listening to their doctor who evidently don’t know that much about the potential side effect from the medication they seem to just want to push onto their patients. I do know, what effects me might not you but better studies might of prevented me from receiving something that is going to to do just as much harm if not more so because of my inability to better prepare myself for their medication.

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@dannyandebbie

No! Reclast is the only one I have taken. My endocrinologist wanted to give me an injection of something different and says Reclast did not give me the symptoms that I am experiencing and set me up with a rheumatologist, 01/29/2026. I know, there is not any medication out there that doesn’t have some kind of side effect and I’m already dealing with issues, dot need more! I just have to keep moving and try to move past my current situation. FDIC should Not allow this drug to be given with out better preparation! I, myself have issues with large amounts of fluid due to a constant burning sensation when I void due to bladded cancer from taking Zantac for years which limited my consumption of water prior to the infusion. My endocrinologist should have assisted me with this rather than just wanting to do the infusion. It’s been over a year now….the pain is constant during the day and worse at night or if I try taking a relaxing break for a day or more. Them more I move, the less it hurts but nights are awful! People really need to better review their options before listening to their doctor who evidently don’t know that much about the potential side effect from the medication they seem to just want to push onto their patients. I do know, what effects me might not you but better studies might of prevented me from receiving something that is going to to do just as much harm if not more so because of my inability to better prepare myself for their medication.

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There is so little regard for "women's health". Consider the pittance allocated for women's health research. Consider that education of physicians has only just started to make menopause somewhat important. Deplorable!

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@kaybollinger79

Do not take it again and try a medall pac. Steroid. One person on the site said it cured the reaction to reclasp

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I believe you meant to say a medrol dose pack. When talking about meds, it’s critical that we are exact and make extra sure spellcheck hasn’t changed our original.

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Side effects from one infusion of reclast were so debilitating, I could not get up from airplane seat. Had to use a wheelchair. Medrole dosepack helped. However continue to experience excruciating pain in my right thigh and under knee. Not joint pain, just several inches of bone. On gabapentin to sleep, however doesn't always work.
I am physically fit and never in my life have experienced the pain like this since infusion 1-1/2 months ago. There is no way that I would recommend this to anyone. It has impacted my life significantly.

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@dannyandebbie

Yes, I go to physical therapy weekly and do my best to follow his recommendation. Some I cannot do because it makes it worse! I do find if I try to take a low key day my arms are worse at night; Tylenol don’t seem to help at all. I do hope that as time passes that the my body overcomes the Reclast. Never again will I allow another infusion!

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Same here! I cannot take Advil and Tylenol does nothing. Gabapentin helps sometimes to sleep for a few hours. Going to see a Sports Medicine doctor as follow up. However, this has significantlly impacted my life.

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