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DiscussionDiagnosed with PMR 16 days ago.
Polymyalgia Rheumatica (PMR) | Last Active: Jul 27 12:36pm | Replies (56)Comment receiving replies
Replies to "A similar thing happened to me. Was initially on 20 mg/day of prednisone due to PMR/GCA...."
Have you stopped Actemra and been able to stay off prednisone? I have been on Actemra for more than 6 years with virtually no side effects. Whenever my Actemra infusions have been held for more than 6 weeks, my symptoms return along with increased inflammation markers. My rheumatologist sees no need and has no plan to discontinue Actemra.
Maybe I need to try again to see if Actemra can be stopped. My problem is that multiple different conditions could flare up again. I would have to convene a committee of multiple medical specialists to see if they could all agree with a plan to stop Actemra.
billc1965 | @billc1965 | 1 minute ago
Thank you. Never considered that the prednisone in early days worked with fully functioning adrenal glands that decline as we continue with prednisone, hence the setbacks…..