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What's next after SiNETS?

Neuroendocrine Tumors (NETs) | Last Active: Jul 19 4:44pm | Replies (31)

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Thank you for your reply.
We did discuss the shot and medication. My oncologist feels that why go on medication for my lifetime when we can remove it, run pathology, and then perhaps medicate. Honestly, im the kind that when there is a lump, bump, mark, I want it out. But I certainly will way my options and see what happens.
We still need to see if its metastatic. I'm a bit confused by it all.

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Replies to "Thank you for your reply. We did discuss the shot and medication. My oncologist feels that..."

Hello @carver1164

I've had surgery for three NETs in the duodenal bulb. It is a difficult surgery, and it takes a while to recover, but it is good to know that it is no longer there. I agree that where there is a lump, I want it out.

Will you keep posting and let me know how the process is going?

Hello, good afternoon. First of all, I'm sorry you're going through this. My wife had a pancreatic NET. After two years of reading everything, I understand that the only cure is tumor removal, so if that's possible, I think it would be best. With this type of disease, you have to be proactive; sometimes doctors don't pay much attention. I recommend you read up on this disease, but from reliable sources. There are many travelers here who can guide you on where to read. I wish you the best of luck.