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Neuroendocrine Tumors (NETs) | Last Active: Jul 19 4:44pm | Replies (31)
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I've had NETs of the small intestine (Mesentery) for many years. Let me offer this hypothetical:
If you do have NETS and its "well differentiated" slow growing and it's a singular 9mm mass, you and your NETS team might decide that you should go on a monthly Lanreotide or Octreotide injection to inhibit cancer growth and monitor. Lanreotide alone did wonders for my symptoms. You might live a long time with a monthly shot. I suggest you not rush into having a SI resection. Take your time and study your options.
Replies to "I've had NETs of the small intestine (Mesentery) for many years. Let me offer this hypothetical:..."
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Hi
I agree with this "wait" approach as well. My husband was diagnosed last year with grade 1, stage 4 (liver metastasis). He is stable on once a month Lanreotide shot. We have tried to educate ourselves and seeked multiple opinions from NET specialists. NETs are very much a marathon not a sprint, and rushing to do surgery may not necessarily lead to the cure you are hoping for. It is not uncommon to have NETs be present in your body that are below detection levels, but can then grow slowly over years. Of course surgery may be a good option in your particular situation, especially if you are having symptoms.
Please seek multiple opinions before deciding.