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Anyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Sep 13 9:29am | Replies (3185)Comment receiving replies
I was just diagnosed with PN. For me, it also came out of the blue. I am an athlete and back in February started experiencing excruciating pain in my left left from the back of the knee, down the outside of the leg into the ankle and foot. At it's worst I was barely able to lift my leg due to some loss of mobility. There were days the pain was so bad, I would be in tears on the way home from the gym. No matter what direction I tried to rest my leg, I was in pain.
Over time, it has gotten better. I've been working with Innovative Movement & Sports Medicine for many years so she knows me and my physical ability well. Since this started, she has done cupping, scraping, dry needling, stretching, rolling on lacrosse balls, etc. I also use a topical rub with CBD in it.
My pain and mobility has improved since February, however it's not gone. I finally had an EMG done last week and got the diagnosis of PN after seeing MULTIPLE doctors, none of whom seemed to care enough to even schedule follow-ups. I think that has been the worst of my experience.
I am not diabetic and also drink alcohol very rarely, so am able to rule those causes out. I am hoping to get to the underlying cause and then work from there so I can get back to doing the hard core workouts I've always loved.
I am following threads here to see what others are experiencing and trying to work through/live with PN.
Replies to "I was just diagnosed with PN. For me, it also came out of the blue. I..."
I'm not getting better with exercise so keeping house is enough for me. and that's getting to be too much at age 93. My PN is similar to yours including our former lifestyle so I'm glad to know you are improving with exercise, but slower exercise repetition is easier on older folks to avoid extra pain. (I read this somewhere.)
I find no reason for more pain in my right leg except aging. After all, we are just Pilgrams on this old earth, and the best is yet to come. Vyolet
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" … none of whom seemed to care enough to even schedule follow-ups."
That's especially infuriating, @gaelas. You'd think a 3-, 6-month, or 1-year follow-up would be the least of extended care.
I do know "the look," however, when a doctor is at loss as to what to do next. I've seen it the eyes of my doctors. I saw it in the eyes of the doctor who administered my first EMG and pronounced my condition as "idiopathic peripheral neuropathy." (I've since refined that diagnosis to CIAP, or chronic idiopathic axonal polyneuropathy).
I remember that afternoon in his office: late on a rainy Friday's afternoon, how, with the results of my EMG in his hand, he walked not toward me but away, to stand looking out at the rain for what seemed to me hours but was I'm sure not even a full minute, before turning back and giving me my diagnosis. That was the first time I saw "the look" in a doctor's eyes, the look of What do we do next?
Unlike your doctors, he and I did do a follow-up, only one in-person, but since then by phone. He'll adjust my medication by phone, depending upon how I tell him I'm doing. He's salvaged his reputation in my eyes. We may not do "real" follow-ups, but at least he makes me feel that he's still there for me.
I wish you all the best, @gaelas
Ray (@ray666)