Bermuda -
That’s the best news EVER, But - Do you think the doctor was sincere in saying LC eventually goes away? Many here say they’ve had it for many years!!! Did the doc estimate WHEN? But thank you for relating it.
I’m set to go to Mayo for 5-7 days to be “treated” for fatigue but I’m wondering what their treatment for fatigue actually IS! So many here say there is NO effective treatment (or can’t find a doc who WILL treat them.)
And, second, did they treat you for fatigue? Third, was their treatment effective for you? And, finally, HOW effective was the treatment? 25%, 50%, 75%?
Other important questions: (1) What did 5-7 days at Mayo cost? and (2) Does Medicare cover the cost?
I suspect you’re right that LC patients who got good results with Mayo’s treatment don’t bother to write about their success here. But Mayo’s docs should have records from follow-up studies. Did you ask the Mayo docs to relate the effectiveness of their treatment? I asked the intake person there how they treat for LC fatigue but he refused to tell me.
Thanks again for your helpful comments, and best wishes to you. I hope you can take the time to address all these questions for the many of us suffering -for years - with this terrible disease.
Stuart