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Glioblastoma: Anyone else struggle with being a caretaker?

Brain Tumor | Last Active: Aug 21 12:43pm | Replies (20)

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My eldest daughter was diagnosed with brain cancer at 29; she was married with 3 small children.

Brain cancer is such a game changer and my heart goes out to you as a primary caregiver.

What I found most difficult, and still do, is knowing what behaviors and changes in her personality are from the cancer itself, or the stress and anxiety of having cancer in her lexicon of life. Her life is no longer "normal" after the diagnosis and subsequent two surgeries.

The best I can do is tell you it is imperitive you find social support in any shape, form or fashion. You cannot be 24/7 and alone socially with a brain cancer patient.

It isn't selfish to seek your own life outside his cancer experience. Yes, you can be supportive and loving, but you must set up boundaries or this disease and medical situation will do you harm.

You must build a life stronger for yourself, so YOU can survive.

It isn't selfish at all as brain cancer is SUCH a game changer.

If he won't get counseling and mental support of himself to handle his emotions - which it sounds like he probably would not - then you get some for yourself.

You providing empathy and caregiving for him does not include tolerating mental abuse of any kind.

My - what used to be kind, loving, and beautiful laughing 30 yo daughter - has changed so much from the cancer, that I have had to distance myself somewhat from her abuses over the years after her brain surgeries. I am here for her if she needs me and she does call when things get heavy as she is not "cured" - she will have more brain surgeries - as her cancer cannot be totally removed - and that is ok.

PM me if you need further support.

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Replies to "My eldest daughter was diagnosed with brain cancer at 29; she was married with 3 small..."

I appreciate the response. It has helped greatly. I’m so sorry for your daughter and you having to go through this. And her kids too.