@brianjarvis
I had my proton radiation done at UFHPTI. They have been doing proton radiation since 2006.
UFHPTI was given a 25 million dollar grant to study the long term treatments and outcomes of radiation treatments. There were 2500 patients recruited. I am one of the patients in the study.
As I mentioned before when I was at UFHPT I saw so many children there is was sad. The UFHPTI facility is ultra modern. The entire length of the 5 gatries seemed to me about the length of a football field. Along the other side of the 5 different gantries and treatment rooms were special rooms for children before and after their treatments.
Patients come from all over the U.S. to UFHPTI and many countries also. I think because they have been doing proton radiation since 2006. My R/O has done thousands of radiation treatments. As you mentioned they have a physics department that decides the dosage, type beams, etc.
When I finished my treatments the entire team (you have the same team each time and are identified by colors (My blue team). The entire blue team accompanied me out into lounge area (a huge lounge area with a piano, refreshments, etc.) and a huge 6 foot like long cylintrical chimes. There is a rope and you swing a device that rings the chimes. I did that with my picture and team taken. Everyone in the lounge got up and applauded. I made sure every day I was there to make sure I did the same for others when their turn came to ring the chimes.
I am still going back there now every year for follow ups. And I fill out a questionaire every 3 months for the research study. When I have my follow ups they are twice as long as I am part of the research study and they go over every question on the survey along with the DRE.
I had my proton treatments at the University of Cincinnati that shares gantries with a Childrens Hospital. I was reminded of this when I went in for scans. (See attached photo.) The children’s side was kept separate from the adult side, but some things were shared. (See attached photo - Childrens Hospital on the left; Proton Center that I went to on the right.)
I chose to have my proton radiation treatment results submitted into a registry (https://clinicaltrials.gov/study/NCT02040467). Hopefully, it will help someone make a decision one day.
Interestingly, it turned out that one of the radiation technicians remembered me from a visit I had made to our local high school eleven years earlier when I was vice mayor of my city (later to become mayor). I had been invited to their AP Government class to talk about local government. The radiation technician remembered me from his senior class that I spoke at. (It pays to be nice to people. You never know who might be pointing a radiation beam at you one day!!!)
I haven’t been back to the proton center since my treatments ended. I selected a medical oncologist at a cancer center just a few miles from where I live. She coordinated my ADT injections and now my regular bloodwork.
So far, those visits have been uneventful.