Opiate Pain Medication

Posted by lisacm @lisacm, Apr 17, 2022

My husband suffers from severe chronic abdominal pain and has been for last 9 years. He is on very high doses of opiates. We currently live in California but would like to move out of his state. His pain doctor is concerned if he moves to another state, he will not be able to be prescribed the meds he is currently on because now they are only prescribed for patients with terminal cancer. Has anyone heard of this or had any experience with something like this? Personally I don't think this makes sense because he's been on these meds for years so I'm trying to understand why this would be an issue.

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Profile picture for callalloo @callalloo

I don't dismiss CBD or any particular drug and I wouldn't. I was onlybaddressing the difficulty doctors are having now in legitimately prescribing any drugs that 'might' (by the government) be considered possibly habit-forming. I had mycoplasma pneumonia and whopping cough and, in order to prescribe 48 hours worth of hydrocodone, the doctor's office manager had to file paperwork to 4 different government websites. And the prescription could not be called into the pharmacy. It had to be printed and taken, by patient no less, to the pharmacy. And we had to try 11 different pharmacies to find one that had it in stick. So, there I was, with a fever of 104, taking my feverish self to a pharmacy that did not have a drive-through window, exposing everyone to the germs I was carrying, just to be able to get a cough-suppressant so I could maybe sleep through the night. I had been sent to the ER earlier in the day but the hospital lost the admitting papers and sent me home, with a then-temperature if 104.5.

The state's prescription laws made unnecessary work for the physicians, intolerable inconvenience for patients and loved ones and have so far not dented the illicit drug trade. I feel for people in chronic pain whose access to life-saving pain help is being restricted by stupid laws passed by those not suffering themselves. I read a comment once wherein a physician referred to 'the tyranny of the healthy' who don't always understand the lives of those who aren't so lucky. I think that policy makers and politicians can be guilty of that myopia.

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I get opiates every month. No problem. My doctor had to fill out government paperwork for chronic condition one time and file with government. They fax prescription or call over no problem. I am so grateful I was not effected by this unthoughtful government over-reach.

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Profile picture for regalrottweilers @regalrottweilers

I get opiates every month. No problem. My doctor had to fill out government paperwork for chronic condition one time and file with government. They fax prescription or call over no problem. I am so grateful I was not effected by this unthoughtful government over-reach.

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That's good to hear. These are state laws and some states have more compassionate laws in place. My doctor at the time said that the medical marijuana lobby was the push behind ever-stricter laws, so people will be pushed to turn to that for pain relief. That might or might not be true but med marijuana wouldn't have helped me for cough-control at time.

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Hi, I’m currently on Xtampza which is a long acting opiate and I’m on opioids three times a day for breakthrough pain. I have severe degenerative stenosis of the spine and I’m currently becoming a full quadriplegic from the cervical area. I’ve already been a person with three spinal fractures and have herniation from almost every cervical too thoracic and from T 11 down I’m herniated with cord compression and complete mobility from the waist down. The only thing that gets me through every day is the pain medication, which like somebody said before gives me a few hours of relief. I had a good compression in 2001 of C5 to C7 due to arthritis that was undiagnosed for one year. So I’m already using pain medication for that many years ago. It was difficult some years back to get pain medication if you switched pharmacies but now it has become impossible. As of June 1, CVS Walgreens, Walmart, Publix and all two little local pharmacies completely stopped writing prescriptions for opioids for several pain doctors not that they did anything wrong. My doctor was never written up, brought up for any reason and has been practicing in the same town for 25 years but because of the shortage of pain medicine doctors for chronic pain, he’s one of the only doctors that sees patients so his practice is tremendous so many patients in the county get their medicines from these local and national chains now because the pharmacies are no longer giving out the medication I was forced to go to a national male or a company. But as you may know with mail away prescriptions, take time to get received in the mail and with the law in the state of Florida opioids can only be dispensed after 28 days so there is a gap of about one week where I will not have any medication and I’m completely panicked because I don’t know what to do. Does anybody know about laws in Florida or anybody involved with any lawsuits for this or any reason? If so, please let us know.

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Profile picture for mindyi63 @mindyi63

Hi, I’m currently on Xtampza which is a long acting opiate and I’m on opioids three times a day for breakthrough pain. I have severe degenerative stenosis of the spine and I’m currently becoming a full quadriplegic from the cervical area. I’ve already been a person with three spinal fractures and have herniation from almost every cervical too thoracic and from T 11 down I’m herniated with cord compression and complete mobility from the waist down. The only thing that gets me through every day is the pain medication, which like somebody said before gives me a few hours of relief. I had a good compression in 2001 of C5 to C7 due to arthritis that was undiagnosed for one year. So I’m already using pain medication for that many years ago. It was difficult some years back to get pain medication if you switched pharmacies but now it has become impossible. As of June 1, CVS Walgreens, Walmart, Publix and all two little local pharmacies completely stopped writing prescriptions for opioids for several pain doctors not that they did anything wrong. My doctor was never written up, brought up for any reason and has been practicing in the same town for 25 years but because of the shortage of pain medicine doctors for chronic pain, he’s one of the only doctors that sees patients so his practice is tremendous so many patients in the county get their medicines from these local and national chains now because the pharmacies are no longer giving out the medication I was forced to go to a national male or a company. But as you may know with mail away prescriptions, take time to get received in the mail and with the law in the state of Florida opioids can only be dispensed after 28 days so there is a gap of about one week where I will not have any medication and I’m completely panicked because I don’t know what to do. Does anybody know about laws in Florida or anybody involved with any lawsuits for this or any reason? If so, please let us know.

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Are you not a candidate for surgery

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Profile picture for mindyi63 @mindyi63

Hi, I’m currently on Xtampza which is a long acting opiate and I’m on opioids three times a day for breakthrough pain. I have severe degenerative stenosis of the spine and I’m currently becoming a full quadriplegic from the cervical area. I’ve already been a person with three spinal fractures and have herniation from almost every cervical too thoracic and from T 11 down I’m herniated with cord compression and complete mobility from the waist down. The only thing that gets me through every day is the pain medication, which like somebody said before gives me a few hours of relief. I had a good compression in 2001 of C5 to C7 due to arthritis that was undiagnosed for one year. So I’m already using pain medication for that many years ago. It was difficult some years back to get pain medication if you switched pharmacies but now it has become impossible. As of June 1, CVS Walgreens, Walmart, Publix and all two little local pharmacies completely stopped writing prescriptions for opioids for several pain doctors not that they did anything wrong. My doctor was never written up, brought up for any reason and has been practicing in the same town for 25 years but because of the shortage of pain medicine doctors for chronic pain, he’s one of the only doctors that sees patients so his practice is tremendous so many patients in the county get their medicines from these local and national chains now because the pharmacies are no longer giving out the medication I was forced to go to a national male or a company. But as you may know with mail away prescriptions, take time to get received in the mail and with the law in the state of Florida opioids can only be dispensed after 28 days so there is a gap of about one week where I will not have any medication and I’m completely panicked because I don’t know what to do. Does anybody know about laws in Florida or anybody involved with any lawsuits for this or any reason? If so, please let us know.

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I am sorry, that other person would ask you a question like that. She doesn't realize how lacking in empathy or your condition. She asked in a kind way, but THIS is why we are in the predicament we are in - because people either DON'T take it seriously OR there is abuse in the system. Here are my thoughts:
Contact your congressional representatives RIGHT AWAY. They can do a lot on your behalf. Here in California they do and can. But, I know FL is kind of a surreal place. Here, they would help greatly. Second thing is discuss with your doctor the situation exactly as you've written it here. NO ONE should go without their medication because of a systemic "GAP." Shameful. Usually the doctor will write a supplemental prescription OR they can write an additional pill into your day. So for one month you have an increased dose and then go back to regular dose and you'll have an extra 4 weeks for 4 months and do it again. I would be panicked if I were in your shoes. I had a change of my opioid and no one seemed to care I was without medicine for 2 WEEKS!!! I would have... I don't know what... but I didn't have to because I have accumulated a couple extra weeks over a few years just for cases like this or if we have an earthquake or another shortage. So sad the way we get treated, eh? And if those ideas don't work, find a probono attorney and sue. No one should be made to "SUFFER." That is the word I use which gets everyone's attention. Tell them you are suffering because of this problem. They are causing you emotional suffering. You can't sue however, until you figure out WHO should be held accountable for your suffering.

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Probably is a real issue. My state has a maximum limit to narcotics unless you are a cancer patient. I would suggest research.

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If you’ve been on the same medication for many years maybe it’s time for a change. I switched from oxycodone to morphine to buprenorphine patch. Read this. https://pmc.ncbi.nlm.nih.gov/articles/PMC4675640/ you need a 24/7 pain relief system and the article should explain.

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Profile picture for mindyi63 @mindyi63

Hi, I’m currently on Xtampza which is a long acting opiate and I’m on opioids three times a day for breakthrough pain. I have severe degenerative stenosis of the spine and I’m currently becoming a full quadriplegic from the cervical area. I’ve already been a person with three spinal fractures and have herniation from almost every cervical too thoracic and from T 11 down I’m herniated with cord compression and complete mobility from the waist down. The only thing that gets me through every day is the pain medication, which like somebody said before gives me a few hours of relief. I had a good compression in 2001 of C5 to C7 due to arthritis that was undiagnosed for one year. So I’m already using pain medication for that many years ago. It was difficult some years back to get pain medication if you switched pharmacies but now it has become impossible. As of June 1, CVS Walgreens, Walmart, Publix and all two little local pharmacies completely stopped writing prescriptions for opioids for several pain doctors not that they did anything wrong. My doctor was never written up, brought up for any reason and has been practicing in the same town for 25 years but because of the shortage of pain medicine doctors for chronic pain, he’s one of the only doctors that sees patients so his practice is tremendous so many patients in the county get their medicines from these local and national chains now because the pharmacies are no longer giving out the medication I was forced to go to a national male or a company. But as you may know with mail away prescriptions, take time to get received in the mail and with the law in the state of Florida opioids can only be dispensed after 28 days so there is a gap of about one week where I will not have any medication and I’m completely panicked because I don’t know what to do. Does anybody know about laws in Florida or anybody involved with any lawsuits for this or any reason? If so, please let us know.

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I go to pain management clinic. They have more relaxed laws than private doctors. I've been under their care for over 10 years. I live in Florida. I see my doctor every 2 months. He sends 2 scripts over. One to fill, one on file that I fill about a month later. I take them 3 to 4 times a day. It was also publix that offered to give me ER morphine when I was diagnosed with cancer in Feb instead of increasing the number of pain pills. I've never had a problem with publix filling my scripts. See if your doctor is willing to refer you to a pain management clinic. If you have the paperwork to back up your issues then there shouldn't be a problem. I've had back issues too for years. My thighs already get numb if I stand too long in one place. I can't lie on back in bed because that makes them numb too. I'm so afraid one morning I'll wake up and not be able to move or worse, my legs just give out and I hit the floor and can't get up. I have neuropathy in my fingers and toes but it's hard to know what's the result of the chemo and what's related to my back.

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