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There is no hope: Life feels impossible to me

Autoimmune Diseases | Last Active: 3 days ago | Replies (85)

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What I see here is how people living with disabling chronic illness have learned to cope by changing their perceptions, their health regimen. @ariza9110 I would like to share that I became ill when I was 31 and now I'm 67. I can tell you that I had extreme chemical sensitivities when I was in my 30's. In addition to 4 autoimmune illnesses, I had cancer. I lived in an old apartment with terrible black mold while going through radiation treatments.
Here's what I've experienced; brain fog was initially very difficult, but it didn't last. I had gluten sensitivities and was gluten free for 10 years, then that cleared up also. I have 3 decades of dealing with chronic problems that I learned (somehow!) to cope with, then things change.

I understand feeling hopeless. But following suggestions by folks here sounds like a good place to start. My feeling is there have been symptoms coming and going , the most important thing for me has been creativity. People are creative with their approach to their illness, they are learning natural medicine to help others (@rainerhans). I became a certified chair yoga therapist because I couldn't find a good yoga therapist when I moved here. Now I offer free classes for seniors and the disabled.

When I turned 60 and realized half my life I've been disabled, I was very surprised to learn that if I had to do it all over again, I wouldn't change a thing. I've become a published poet in this time. I love the natural world. I love baseball...

Find even one thing a day that brings you joy. That's how I got through my depression in those first 10 years. Gradually, I looked forward to that one thing and built on it. Even with illness we can have passions for love, joy and creativity.

This is hard won advice.

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Replies to "What I see here is how people living with disabling chronic illness have learned to cope..."

Soo very inspiring!! Thank you soo much for sharing..God bless you!!

VERY TRUE MINDSET IS THE MOST IMPORTANT FACTOR IN YOUR TREATMENT.

DIAGNOSED IN 2021 WITH CLL/SML DID TREATMENT AND IN 6/2022 DECLARED IN REMISSION PHASE
HAD A PET LAST SATURDAY AND IT SEEMS IT'S COME BACK, I'LL FIND OUT TOMORROW WHEN I SPEAK TO DOCTOR.

SHIT HAPPENS