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NET - Insulinoma

Neuroendocrine Tumors (NETs) | Last Active: Nov 11, 2023 | Replies (210)

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@preeti

@marilyn2525 Thank you for sharing your experience dealing with Insulinoma! You have been super helpful.

I did read all your posts and know that you also had tumor on the head of pancreas. Was it on the surface? Considering you had to stay for 9 days post op, I am wondering what’s going to be in my case. I left my kids at my sisters place and constantly thinking how I am going to plan everything with both me and my husband are here at Mayo. I am really hoping and praying that they can remove the tumor with less invasive laparoscopic surgery.

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Replies to "@marilyn2525 Thank you for sharing your experience dealing with Insulinoma! You have been super helpful. I..."

When I had my tumor removed, there was no talk about any other surgery than open. My tumor was at the head near the pancreatic duct. They removed and checked the margins to make sure they had it all. I think on second day of post surgery I sat up in bed, then slow walking the hallways.
I wish you all the best, just think about how great it’s going to be with the tumor out. I never realized how bad my life was with it because I learned to live with it. It’s really so nice. Some day soon this becomes a distant memory. Truly