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NET - Insulinoma

Neuroendocrine Tumors (NETs) | Last Active: Nov 11, 2023 | Replies (210)

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@preeti

@hopeful33250, @marilyn2525, @ahtaylor, thank you so much for your response. It certainly helped me make a decision and I plan to keep my appointment and will visit Mayo next month. They have scheduled for blood work, consultation appointment with Dr. Vella, and 72 hours fast test. I really hope that they can conduct further tests (CT, EUS) to locate tumor(s) while I am there.

@marilyn2525 - thank you for another detail reply! You have been extremely helpful! I am really glad that your health has significantly improved with the care you received at Mayo.

@ahtaylor - I booked the air travel. Thank you for the suggestion on accommodation. I will soon make those arrangements.

Fingers crossed that everything goes well! Like many of you, I have been suffering for a long time and really looking forward to treat the Insulinoma at Mayo.

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Replies to "@hopeful33250, @marilyn2525, @ahtaylor, thank you so much for your response. It certainly helped me make a..."

I so appreciate your update, @preeti. I'm glad to hear that you will be seen at Mayo. Mayo has some exceptional people at their facility who work with insulinoma tumors. I hope that yours can be easily located and treated.

Will you post an update as your appointment gets closer? Any of us on this forum would be happy to offer you suggestions and support as you continue with this process!

Preeti, call your Mayo Dr. ask the secretary of your Dr if they would please schedule your possible CT & EUS to be done the day after or as close to 72 fast so that you dont have to fly back. My Dr had her team make as many appts around the time I was there. But I can tell you that after the 72 hr fast, I went home and they scheduled the CT, EUS & surgery to be done all in that trip. They are wonderful about getting as much done as possible. they even moved appts up when they could and I didn’t ask.