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Anyone have lung NETs lining your pleura?
Neuroendocrine Tumors (NETs) | Last Active: Jul 24 4:52am | Replies (22)Comment receiving replies
Yes it was. It showed on the CT, but was more extensive once surgeon got in. He was able to remove 7 as a whole, but more were present. It was stated that the tumors in pleura were not the origin of the cancer. It metastasized there.
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I do hope he is able to find a good specialist to help him on this journey. I saw in your thread he is being treated at upmc. Was he diagnosed in Pittsburgh? I am in Pittsburgh. I have sought treatment at UPenn in Philadelphia and also have a local oncologist. I was told it is extremely rare for this disease to metastasize to the pleura. I am happy to share anything I have learned along the way with you to help him navigate this disease.