I will post as I learn more, hopefully. I am waiting for a phone Consult from the Mayo neurologist I saw last month. Some question whether this is inherited spinocerebellar ataxia after seeing local movement disorder specialist and Mayo neuropthamalogist. However, as my symptoms fluctuate by time of day, I started to wonder if my system was being affected by hormones or other chemicals, especially in the morning.

I had a sigmoidoscopy and endoscopy a year and a half ago at Mayo with nothing found. I will ask the Mayo neurologist if an endocrinology referral Is in order. Thanks.