Does anyone have a solution to help manage Reclast side effects?

Posted by dingus @dingus, Aug 15, 2024

Does anyone have a solution to combat Reclast side effects. I had the infusion a year and a half ago and the side effects started shortly after I had the infusion. I still have weak legs, swelling in feet, pain in bones, dizziness (serious dizziness), cold sweats, tired all the time and nervous twitching in bones. Any suggestions?

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kaybollinger79 | @kaybollinger79 | Jul 8 6:29am

I haven’t seen one yet, but I know my endocrinologist is no help. We have one in the Gainesville ga. area who only deals with autoimmune disease. I feel sure this was an autoimmune response. Someone online had this happen and was prescribed a medrall pac (steroids) and has been fine after the episode. I think that is what I should have done. They put me on muscle relaxers and tramadol. If this ever happens again I will take steroids.

kaybollinger79 | @kaybollinger79 | Jul 8 6:30am

I would see if you could try a medrall pac (steroids) during an episode.

hlp123 | @hlp123 | Jul 8 4:24pm

In reply to @gravity3 "Our bodies are all spectacularly different. One woman's poison is another woman's salvation." + (show)

Still trying to find out which osteoporosis medication has the least side effects. I've had one year of Prolia and one year of reclast and I am not ok with the side effects of either one. I know we are all different, but isn't there something in addition to vitamins and exercise that we can take that our chances of minimal side effects are increased
Thank you

cm4713 | @cm4713 | Jul 9 10:33am

In reply to @hlp123 "Still trying to find out which osteoporosis medication has the least side effects. I've had one..." + (show)

I’ve been on Actenel for 6 months with no side effects. One pill weekly. Will be having bone density in the future. Has anyone started taking this?

hlp123 | @hlp123 | Jul 10 3:44pm

I'm looking forward to responses to this question !
Thank you,

dannyandebbie | @dannyandebbie | Jul 13 9:00am

In reply to @standardrep "Years ago family doctor recommended a bone growth like reclasp, one treatment and never again. I..." + (show)

13 months Reclast infusion and still experiencing a lot of pain in both shoulders, left foot and nauseous at times! My endocrinologist says the Reclast infusion did not do this and recommended that I see a Rheumatologist; scheduled me for a visit on 01/29/2026; hopefully better before then. They say a Reclast infusion is good for 18 months, hopefully some if not all of the side effects are gone before then. I have noticed that the more physical I am, the pain is less but Never goes away

mcallister1002 | @mcallister1002 | Jul 13 10:24am

In reply to @healer74 "I just had another Reclast infusion last month and have had them once per year for..." + (show)

How long do you have to stay on Reclast?

ladybugnc | @ladybugnc | Jul 14 12:05pm

My rheumatologist is the doctor who prescribed my Reclast infusion last November. My left arm has limited use and pain at least once a week. I will see her in September and I will certainly tell her my concerns. She had told me I would need another infusion in November of this year. I will have to think long and hard about this. This is the only medication I have ever had for my severe osteoporosis. I wish you the best in your decisions.

kaybollinger79 | @kaybollinger79 | Jul 14 12:07pm

In reply to @dannyandebbie "13 months Reclast infusion and still experiencing a lot of pain in both shoulders, left foot..." + (show)

Do not take it again and try a medall pac. Steroid. One person on the site said it cured the reaction to reclasp

gravity3 | @gravity3 | Jul 14 1:39pm

In reply to @ladybugnc "My rheumatologist is the doctor who prescribed my Reclast infusion last November. My left arm has..." + (show)

Why not a bone builder med like tymlos, forteo or evenity. Sequencing is very important with Osteoporosis drugs.. what was the rational for starting with reclast? Have you read any of McCormick s material.