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Of course, most of us on Mayo Connect are not medical professionals, just patients like yourself. So we cannot diagnose your problems, we can only share our own experiences.
It sounds like you might have some neurological problems associated with you previous intensive cancer treatment given the balance, double vision, etc. Have you seen a neurologist? For the digestive problems, have you had an upper and lower endoscopy? Most neuroendocrine tumors are found in the digestive tract.
Have you had a consult with an endocrinologist regarding the extreme hunger and weight problem?
I certainly understand your need to find answers. These symptoms sound very distressing as well as inconvenient. I would be interested in learning more about your search for an answer. Will you continue to post as you look for answers?
Replies to "@sarcomasurvivor Of course, most of us on Mayo Connect are not medical professionals, just patients like..."
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I will post as I learn more, hopefully. I am waiting for a phone Consult from the Mayo neurologist I saw last month. Some question whether this is inherited spinocerebellar ataxia after seeing local movement disorder specialist and Mayo neuropthamalogist. However, as my symptoms fluctuate by time of day, I started to wonder if my system was being affected by hormones or other chemicals, especially in the morning.
I had a sigmoidoscopy and endoscopy a year and a half ago at Mayo with nothing found. I will ask the Mayo neurologist if an endocrinology referral Is in order. Thanks.