@sarcomasurvivor

Of course, most of us on Mayo Connect are not medical professionals, just patients like yourself. So we cannot diagnose your problems, we can only share our own experiences.

It sounds like you might have some neurological problems associated with you previous intensive cancer treatment given the balance, double vision, etc. Have you seen a neurologist? For the digestive problems, have you had an upper and lower endoscopy? Most neuroendocrine tumors are found in the digestive tract.

Have you had a consult with an endocrinologist regarding the extreme hunger and weight problem?

I certainly understand your need to find answers. These symptoms sound very distressing as well as inconvenient. I would be interested in learning more about your search for an answer. Will you continue to post as you look for answers?