Thanks for feedback. So glad spleenectomy worked for you. I had read reports say that it worked in about 30% of cases so I didn't want to chance it. I was on prednisone for 17 months, overlapping with Cellcept for 12 months, and 2 rounds of Retuximab ( 4 infusions each time). After 27 months, I went into remission. Now, after 6 months off everything, the Hgb is starting to fall again, down to 11. I have blood work every 2 months now, so will have again in August and another visit to doctor. Hopefully it hasn't dropped more. I feel good and am about to start working with a functional medicine specialist to see if that helps. So far it seems to be idiopathic.

thanks for the info. I am new to this disease.