Digestive issues

Hi! I want to preface I am under the care of GI. I’m just looking for experiences or suggestions for conversations with my GI.I (33F) have had the following:2014 - severe lower cramping with bloody stool. No testing was done but was told likely diverticulitis2017 - severe upper cramping. Again, no testing but was told it was likely a stomach ulcer.2018 - severe lower cramping with bloody stool. No testing was done but was told likely diverticulitisOver the years I started to experience more symptoms until I’m where I’m at now.Now I have constant diarrhea (liquid or soft fluffy at best) 1-8 times per day. Typically it is pale or yellow. It comes in suddenly, typically in the AM but I do have occasional midday or evening/overnight. Little to no warning, which has lead to fecal incontinence. Lots of bowel sounds. Indigestion near daily, hours after eating at times. Fatigue. Burning/cramping sensations. Bloating and flatulence.I have had a colonoscopy/EGD with biopsy. All negative. Im still getting tests so more to come.I have tried Imodium, low-FODMAP, gluten free, dairy free, elimination diets, etc. I have tried pre/probiotics, digestive enzymes, antibiotics, oil or oregano, and various other dietician ordered supplements.Anyone else experience this? What was your outcome? Any advice on what I should ask my GI about?I know it’s possible but I’m scared I’ll end up with the “can’t find anything” IBS-D diagnosis and basically be sent to live like this.I have my next appointment in a week.Thank you for reading!

Hi! I want to preface I am under the care of GI. I’m just looking for experiences or suggestions for conversations with my GI.I (33F) have had the following:2014 - severe lower cramping with bloody stool. No testing was done but was told likely diverticulitis2017 - severe upper cramping. Again, no testing but was told it was likely a stomach ulcer.2018 - severe lower cramping with bloody stool. No testing was done but was told likely diverticulitisOver the years I started to experience more symptoms until I’m where I’m at now.Now I have constant diarrhea (liquid or soft fluffy at best) 1-8 times per day. Typically it is pale or yellow. It comes in suddenly, typically in the AM but I do have occasional midday or evening/overnight. Little to no warning, which has lead to fecal incontinence. Lots of bowel sounds. Indigestion near daily, hours after eating at times. Fatigue. Burning/cramping sensations. Bloating and flatulence.I have had a colonoscopy/EGD with biopsy. All negative. Im still getting tests so more to come.I have tried Imodium, low-FODMAP, gluten free, dairy free, elimination diets, etc. I have tried pre/probiotics, digestive enzymes, antibiotics, oil or oregano, and various other dietician ordered supplements.Anyone else experience this? What was your outcome? Any advice on what I should ask my GI about?I know it’s possible but I’m scared I’ll end up with the “can’t find anything” IBS-D diagnosis and basically be sent to live like this.I have my next appointment in a week.Thank you for reading!

@chronisgirlie92: Your symptoms sound familiar. I went through many tests 4 yrs ago and finally the 24 hour Urine test revealed the underlying cause. It may be worth a discussion in your next Dr visit? Best to you…

Hi! I want to preface I am under the care of GI. I’m just looking for experiences or suggestions for conversations with my GI.I (33F) have had the following:2014 - severe lower cramping with bloody stool. No testing was done but was told likely diverticulitis2017 - severe upper cramping. Again, no testing but was told it was likely a stomach ulcer.2018 - severe lower cramping with bloody stool. No testing was done but was told likely diverticulitisOver the years I started to experience more symptoms until I’m where I’m at now.Now I have constant diarrhea (liquid or soft fluffy at best) 1-8 times per day. Typically it is pale or yellow. It comes in suddenly, typically in the AM but I do have occasional midday or evening/overnight. Little to no warning, which has lead to fecal incontinence. Lots of bowel sounds. Indigestion near daily, hours after eating at times. Fatigue. Burning/cramping sensations. Bloating and flatulence.I have had a colonoscopy/EGD with biopsy. All negative. Im still getting tests so more to come.I have tried Imodium, low-FODMAP, gluten free, dairy free, elimination diets, etc. I have tried pre/probiotics, digestive enzymes, antibiotics, oil or oregano, and various other dietician ordered supplements.Anyone else experience this? What was your outcome? Any advice on what I should ask my GI about?I know it’s possible but I’m scared I’ll end up with the “can’t find anything” IBS-D diagnosis and basically be sent to live like this.I have my next appointment in a week.Thank you for reading!

@cjval52 & chronisgirlie92: Neuroendocrine cancer small intestine with metastases in liver caused the digestive symptoms. Many drs pointed to Chrones, Irritable bowel, etc erroneously!
Diagnosis biopsy from exploratory endoscopic procedure gave the Pathologist what he needed plus I had 2nd opinion by another Pathologist. Very slow growing as a rule - just need monthly shot & surveillance from NET Oncologist; but if progression there are many effective treatments. It can be like a chronic disease - not the cancer we all are afraid of. Initial treatment stopped the digestive issues within a month - without it I would still be in the bathroom or getting more tests! The GA PET scan tracts tumor growth and reveals exact location of tumors. The 24hr urine test was essential in specific dx. Many of my peers qualifies for surgery - removing the offending NET primary tumor tissue.
I am only sharing my tale because I would hate for you to spend valuable time & money having test after test with no answers. My case is a rare form of cancer I admit, but if it could happen to me it can happen to you.

Hi! I want to preface I am under the care of GI. I’m just looking for experiences or suggestions for conversations with my GI.I (33F) have had the following:2014 - severe lower cramping with bloody stool. No testing was done but was told likely diverticulitis2017 - severe upper cramping. Again, no testing but was told it was likely a stomach ulcer.2018 - severe lower cramping with bloody stool. No testing was done but was told likely diverticulitisOver the years I started to experience more symptoms until I’m where I’m at now.Now I have constant diarrhea (liquid or soft fluffy at best) 1-8 times per day. Typically it is pale or yellow. It comes in suddenly, typically in the AM but I do have occasional midday or evening/overnight. Little to no warning, which has lead to fecal incontinence. Lots of bowel sounds. Indigestion near daily, hours after eating at times. Fatigue. Burning/cramping sensations. Bloating and flatulence.I have had a colonoscopy/EGD with biopsy. All negative. Im still getting tests so more to come.I have tried Imodium, low-FODMAP, gluten free, dairy free, elimination diets, etc. I have tried pre/probiotics, digestive enzymes, antibiotics, oil or oregano, and various other dietician ordered supplements.Anyone else experience this? What was your outcome? Any advice on what I should ask my GI about?I know it’s possible but I’m scared I’ll end up with the “can’t find anything” IBS-D diagnosis and basically be sent to live like this.I have my next appointment in a week.Thank you for reading!

Hi! I want to preface I am under the care of GI. I’m just looking for experiences or suggestions for conversations with my GI.I (33F) have had the following:2014 - severe lower cramping with bloody stool. No testing was done but was told likely diverticulitis2017 - severe upper cramping. Again, no testing but was told it was likely a stomach ulcer.2018 - severe lower cramping with bloody stool. No testing was done but was told likely diverticulitisOver the years I started to experience more symptoms until I’m where I’m at now.Now I have constant diarrhea (liquid or soft fluffy at best) 1-8 times per day. Typically it is pale or yellow. It comes in suddenly, typically in the AM but I do have occasional midday or evening/overnight. Little to no warning, which has lead to fecal incontinence. Lots of bowel sounds. Indigestion near daily, hours after eating at times. Fatigue. Burning/cramping sensations. Bloating and flatulence.I have had a colonoscopy/EGD with biopsy. All negative. Im still getting tests so more to come.I have tried Imodium, low-FODMAP, gluten free, dairy free, elimination diets, etc. I have tried pre/probiotics, digestive enzymes, antibiotics, oil or oregano, and various other dietician ordered supplements.Anyone else experience this? What was your outcome? Any advice on what I should ask my GI about?I know it’s possible but I’m scared I’ll end up with the “can’t find anything” IBS-D diagnosis and basically be sent to live like this.I have my next appointment in a week.Thank you for reading!

Hi! I want to preface I am under the care of GI. I’m just looking for experiences or suggestions for conversations with my GI.I (33F) have had the following:2014 - severe lower cramping with bloody stool. No testing was done but was told likely diverticulitis2017 - severe upper cramping. Again, no testing but was told it was likely a stomach ulcer.2018 - severe lower cramping with bloody stool. No testing was done but was told likely diverticulitisOver the years I started to experience more symptoms until I’m where I’m at now.Now I have constant diarrhea (liquid or soft fluffy at best) 1-8 times per day. Typically it is pale or yellow. It comes in suddenly, typically in the AM but I do have occasional midday or evening/overnight. Little to no warning, which has lead to fecal incontinence. Lots of bowel sounds. Indigestion near daily, hours after eating at times. Fatigue. Burning/cramping sensations. Bloating and flatulence.I have had a colonoscopy/EGD with biopsy. All negative. Im still getting tests so more to come.I have tried Imodium, low-FODMAP, gluten free, dairy free, elimination diets, etc. I have tried pre/probiotics, digestive enzymes, antibiotics, oil or oregano, and various other dietician ordered supplements.Anyone else experience this? What was your outcome? Any advice on what I should ask my GI about?I know it’s possible but I’m scared I’ll end up with the “can’t find anything” IBS-D diagnosis and basically be sent to live like this.I have my next appointment in a week.Thank you for reading!

Hi! I want to preface I am under the care of GI. I’m just looking for experiences or suggestions for conversations with my GI.I (33F) have had the following:2014 - severe lower cramping with bloody stool. No testing was done but was told likely diverticulitis2017 - severe upper cramping. Again, no testing but was told it was likely a stomach ulcer.2018 - severe lower cramping with bloody stool. No testing was done but was told likely diverticulitisOver the years I started to experience more symptoms until I’m where I’m at now.Now I have constant diarrhea (liquid or soft fluffy at best) 1-8 times per day. Typically it is pale or yellow. It comes in suddenly, typically in the AM but I do have occasional midday or evening/overnight. Little to no warning, which has lead to fecal incontinence. Lots of bowel sounds. Indigestion near daily, hours after eating at times. Fatigue. Burning/cramping sensations. Bloating and flatulence.I have had a colonoscopy/EGD with biopsy. All negative. Im still getting tests so more to come.I have tried Imodium, low-FODMAP, gluten free, dairy free, elimination diets, etc. I have tried pre/probiotics, digestive enzymes, antibiotics, oil or oregano, and various other dietician ordered supplements.Anyone else experience this? What was your outcome? Any advice on what I should ask my GI about?I know it’s possible but I’m scared I’ll end up with the “can’t find anything” IBS-D diagnosis and basically be sent to live like this.I have my next appointment in a week.Thank you for reading!