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NET - Insulinoma

Neuroendocrine Tumors (NETs) | Last Active: Nov 11, 2023 | Replies (210)

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@marilyn2525

Hello, I've been through diagnoses and removal of an insulinoma tumor at Mayo Rochester....I live in Michigan. Just to be diagnosed was amazing when I had lived with symptoms for a good 15 years. I went to Mayo for a thyroid biopsy and to discuss my weight gain of five pounds a year. Once I talked to a metabolic specialist....she called me back regarding symptoms and told me they believe I have an insulinoma. My symptoms were "classic". I'm making my seventh trip to Mayo tomorrow. I can report that I'm now doing very well...second surgery was Nov. 26, 2018. I believe the physician who diagnosed me saved my life. I have great confidence in their surgeons as well, the team and nursing staff are great.
Six months since my first visit that changed my life.

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Replies to "Hello, I've been through diagnoses and removal of an insulinoma tumor at Mayo Rochester....I live in..."

Hello @marilyn2525

I'm so glad to hear that you are doing so well and that you found such great help at Mayo. Mayo Clinic is a remarkable place and you certainly can attest to that!

You mention that your symptoms were "classic." If you are comfortable doing so, could you please share what those symptoms were? Also, were you aware of any pancreatic problems prior to the diagnosis or was it only the thyroid problem that brought you to Mayo?