I'm post second surgery at Mayo in Rochester. First one removed insulinoma from the head of my pancreas Sept 14, 2018, nine day stay. Was home in Michigan for 6 days and felt infection might be brewing possibly from drain site. Local hospital tried to put a new drain in where the first one had been ( was taken out at Mayo before I left) this reentry was difficult for them and they punctured my bile duct. I was there nine days with both a pancreatic leak and the bile duct was stented. I was able to fly back to Mayo, where they tried to stent / stop the pancreatic leak. Two procedures and two more trips to Mayo later, I made the decision to go for surgery again. On Nov 26, 2018 a different surgeon did an amazing surgery on me. He was able to save the pancreas ( I signed off to have possible 3/4 of it removed ). Once he got in, he found he was able to sew / attach the leak area to the bottom of my stomach. I'm post op four weeks and resting in Florida our primary home is in northern Michigan. We will fly once again to Mayo on Jan 8th to have that stent in the bile duct removed and a CT scan then meet with the surgeon. I am feeling better everyday. Some ups and fewer downs.
Mayo diagnosed me in about 40 mins. Then I went back for 72 hour test to prove it. I flunked the 72 hours test at noon the first day. I suffered with what I now understand was hypos....I called a real bad one an episode. I had three different Internist in 20 years, my husband is an MD. Had I not gone by myself of to Mayo. I would have died one day and never been diagnosed with insulinoma.