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NET - Insulinoma

Neuroendocrine Tumors (NETs) | Last Active: Nov 11, 2023 | Replies (210)

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@amya

Mayo was able to confirm diagnosis of insulinoma and find it with endoscopic ultrasound. Everyone was wonderful. Kind, compassionate and knowledgeable. I am scheduled for surgical removal on 11/27. I am confident in the care I will receive. My worries now are centered around insurance coverage. Working with them to try to get the needed documentation. Sounds like they will approve the insulinoma removal at reasonable and customary. I will need to cover costs above this. I was advised to have my gall bladder removed. I may have to do this in a separate surgery at home.

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Replies to "Mayo was able to confirm diagnosis of insulinoma and find it with endoscopic ultrasound. Everyone was..."

I am so glad to hear that you have a confirmed diagnosis and a treatment plan in place, @amya. That is a relief, isn't it? I will certainly pray and send good thoughts your way on 11/27.

While I have not been diagnosed with insulinoma I have had 3 surgeries for NETs in the duodenal bulb and the 2nd surgery included the removal of the gallbladder. That procedure seems to be common with NETs patients, but I'm not sure of the reason for that.

Do you know how long you will be hospitalized after surgery?