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2.5 Yrs After Proton Rad PSA reached 1.05

Prostate Cancer | Last Active: Jul 14 3:26pm | Replies (17)

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The rule if you start off with radiation, until your PSA rises two points above the lowest it ever reached after radiation, they normally don’t want to do anything.

Thing is they’ve apparently found a metastasis.

Doctor at the PCRI conference discussed using SBRT to zap any new metastasis and keep the PSA undetectable. They felt It was preferable to zap the metastasis as they came, and they felt that that gave long-term relief, Even without ADT. Normally, you can’t see metastasis with a PSA as low as yours is, If they have found one, just let them zap it.

While getting on ADT and Zytiga will stop it from growing and will manage it, but this way, you can get rid of it and not have it as a future problem.

Someday you want to stop ADT and Zytiga (both of them will fail eventually) and you will have that metastasis making PSA. It may have grown over all this time as well, Best to zap it.

Ask your doctors isn’t that what they’re encouraging you to do?

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Replies to "The rule if you start off with radiation, until your PSA rises two points above the..."

Hi Jeff and thanks for replying, your insight is great thanks, I know you have been through it all. The lymph node mets. were discovered before starting orgovyx and zytega that is why they prescribed them the psma/pet lit up a few subtle spots in the lymph nodes just 3-months ago, so started the ADT. But im thinking since i had such a robust response to the drugs maybe radiation could be postponed for a while PSA March 1.05 PSA July 09 >.1. My Oncologist does want to do some form of radiation not proton and im guessing the intended targets are those mets. that lit up on the PSMA/PET scan. Also im wondering if I can cut back on the zytega a bit since the PSA now is so low. Im just not sure if the radiation is needed now, and thinking possibly incorrectly that the ADT therapy has resolved the mets. Do you think just blocking the testosterone is enough to resolve mets? I am so excited about my first PSA reading on the meds being >.1. I asked my oncologist if I should have a PSU ultrasensitive test and she said: To my surprise That's up you--(kind of of a red flag). Apparently she sees no value in determining what the actual number is.

Dr Shultz said that 2-points over nadir is absurd and ridiculous. Some say 3- consecutive rises warrants further investigation. I’m a perfect example of the stupidity of the 2-point rise mine rose .75 after 3 tests and I have metastasis. I had to BEG for 2.5 years to get a psma scan, they kept throwing that two 2 point BS at me, we had a few heated argument and they finally relented.