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The question is, if I take the aggressive route, do i have a good chance of then having many years or maybe a lifetime of no more treatment necessary? If I go the lifetime of various drugs route I’ll have to live with the ADT limitations the rest of my life. I’m only 63, so if I could have 5-8 years of feeling like myself again, I’d take the risk if I thought i had at least a 50/50 chance of success.
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Personally, if it were me I would want to hit this hard NOW. You’ve already gone the ADT route twice so it looks like you would have to be on it forever in order to keep your PSA low.
As you point out, you have a lot of living left to do and these ADT drugs do affect your entire body so your quality of life may be compromised to a significant extent.
However, if you were to try doublet or even triplet therapy now you might actually effect a cure. Another member of our forum, @retireddoc had a similar situation, and this treatment worked for him. Doc, if you’re around, your input would be greatly appreciated. Best,
Phil
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The problem is you were in Gleason eight. Your PSA has already risen significantly in one month. You could wait and see what happens. Your PSA is not that high. You could wait till it reaches .1 to consider starting drugs.
As I mentioned the metastasis, don’t always show up on schedule. I know a few people who stopped there treatment after a year or two of .01, But they ended up with a lot of metastasis After taking a break. I know A few people this has happened to.
If you plan on holding off on the drugs, then getting a PSMA pet test once you hit around .4 that may work, but the metastasis may not wait.
If you are really insistent on doing this, you should consider contacting Doctor Scholz In Marina del Rey. Pay for a visit and find out what he thinks about your idea. He’s the biggest proponent of this technique. You are taking a chance with your cancer and you may want to get an expert opinion on it. He can review your case and tell you what he feels your best decision would be.