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I don’t think as parents we ever stop wanting to protect our children, regardless of their age, of the harsh realities of the not so pretty parts of our daily lives when we live with dementia. Even though they are adamant about wanting to be there for us, and help anyway they can, we still find it hard to share the realities of our days. Our daughter left yesterday to enjoy a nice vacation trip… there is no way I would tell when I talked with her that her dad left home yesterday, drove into town, saw a couple of policeman parked on the side of the road, and stopped to ask for help because people have a hit out on him. He experiences delusions. This was a first for him, but it may have also been a blessing in disguise because I have been trying to stop his driving completely and now thanks to his actions yesterday I may be able to. He even ask me this morning about selling his truck. I have not shared this with any of our three children. They live busy lives and have teenagers to keep up with, there is nothing they can do. As long as I can handle my husband’s day to day on my own I will.

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Replies to "I don’t think as parents we ever stop wanting to protect our children, regardless of their..."

There may not be anything your kids can do, but I think you owe it to them to tell them what's going on. Dementia affects the whole family and that certainly includes children, especially adult children. My son-in-law's mother died of Alzheimer's a couple of years ago after seven years of decline. My daughter and her whole family visited often, though it meant a long drive, and they always took their two boys, who were about ten and fourteen when the whole thing started. Now that my husband has Alzheimer's, my two adult children and my grandsons (16 and 20) know exactly what's going on, how to deal with it and be compassionate and unafraid. Someone on this list mentioned telling the neighbors so they won't be spooked by any strangeness and also so they can help keep an eye on the dementia sufferer. If they see him wandering off, they might be able to intervene or let someone know. My husband doesn't seem to fully realize or accept what's happening, but everyone who knows him knows exactly what's happening and are able to lend support, even if it's just moral support, which is what we mostly need.