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DiscussionAny one with Neuroendocrine tumors getting the shot once a month?
Neuroendocrine Tumors (NETs) | Last Active: Aug 27 7:50pm | Replies (215)Comment receiving replies
Replies to "https://www.google.com/search?q=octreotide+not+containing+the+growth+of+neuroendocrine+cancer&rlz=1C1UEAD_enUS1116US1116&oq=octreotide+not+containing+the+growth+of+neuroendocrine+cancer&gs_lcrp=EgZjaHJvbWUyBggAEEUYOTIHCAEQIRiPAjIHCAIQIRiPAtIBCTIzODIzajBqN6gCALACAA&sourceid=chrome&ie=UTF-8 Above is the source. I have read that it is not 100% effective with everyone..."
After being on Ocreotide for almost 2 years a few of my tumors were still growing, after my PRRT (Lutathera) treatments they were shrinking..
@splendrous, thanks for sharing your source of the second paragraph. I appreciate that you shared your experience, the knowledge that your oncologists shared with you as well as information to quote that other people could review. The link opens a AI-generated answer. Google's AI tool called Gemini, scrapes all content on the Internet to provide these summaries.
AI (Artifical Intelligence) tools do not replace human judgment or oversight. Any text, image or video generated by AI should be viewed as a starting point, not verified factual information. It may contain inaccuracies, biases and other problems. You'll see in small print at the end of the AI summary the following caveat "This is for informational purposes only. For medical advice or diagnosis, consult a professional. AI responses may include mistakes."
It's a good idea to fact check and review for accuracy, relevance, and unbiased balance. I recommend clicking the little link icon to also see the original sources. It looks like in this instance the AI answer pulled from evidence-based studies.
Back to your situation @splendrous. I'm sorry to hear that your tumors continue to grow while receiving Octreotide. I'll be interested in hear what your oncologist suggests as next steps. When do you find out more?
Hello @splendrous,
I look forward to hearing from you after you see your medical team this month. I hope that you get some helpful information on how to proceed. Will you post an update?
Thank you for the information. Sounds like a fair question for your doctors. Knowing that they are growing is always scary. But, you do have options. Are you open to other treatments? Are you leaning towards any?