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I will tell you what my wife takes. everything we do comes from a nutritionist that specializes in brain disorders. so I don't know if you would have side effects.
We still do what the neurologists prescribes though. as far as Cholesterol Carlyle Plant sterols 1200 mg x2 in the morning and NOW Sun Flower Lecithin 1200 mg x2w in the morning. We do the statin at night. We did a full Genetic work up to see what works for her genetics, even down to Tylenol and not Ibuprophen.
I try to get six things a day doe;
1. Mediterranean Diet all meals or at least fresh fruit for breakfast and lunch. I cook fresh for dinner and she helps. ( very time consuming, very)
2. Exercise to raise Pulse rate to 110 to 120 for 20 minutes 4 to 5 days a week.
3. Brain exercises 2 to 3 hours a day. The Bible is great for this for the reading part because of easy AND challenging works and some mazes in a book with a pencil for dexterity and some number games on the computer.
4. Specialization each day. Talk to someone outside of the house, mostly people who know she has some difficulty., like neighbors she walks with.
5. Absolutely NO stress!! It's hard to work around somethings but she gets jer way as long as it's possible for me to make it happen
6 Specific vitamin regimen.
When it was obvious the Neurologist just have a cookie cutter answer. I did over a thousand hours of research, talked to Mayo. Johns Hopkins, Cleveland Clinic and UNC Memory care. We are doing a six week seminar with UNC started this week. She was having trouble with reading 30% to 35% of the words in the Bible each night.
When I went with this six point program I learned from research, Karen went to having trouble with 10% to 15% each night.
I also got her a GoldenDoodle puppy two weeks ago and that has really helped with her doing something that is "HERS".
This works for me/us but I must tell you it is very very very difficult to stick with this. Her family doesn't help at all but my family loves her to death.
don't know if this will help anyone at all but I hope so. she has significant White Matter Disease but there are things we can do to slow or stop it but it's a challenge. Best to all!

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Replies to "I will tell you what my wife takes. everything we do comes from a nutritionist that..."

Thank you so much for sharing this info!

I feel like I research 24/7 while taking care of my sister. Although she's been sick with multiple issues (uterine fibroids, massive PE, etc.) for over 2 years, the WM issues were news to us after bradycardia and an MRI in April. She suddenly went from being a voracious reader to not reading at all, and having the behavior of a child.

She has a terrible PCP and surprisingly bad PCP, cardiologist and neurologist. The cardiologist has zero interest in understanding why she experienced bradycardia or why she has SVTs (erratic heat beats; she had a ZIO heart monitor for 2 weeks). I've researched it more and learned that this issue needs to be addressed by a cardiac electrophysiologist (cardiologist who diagnoses and treats heart rhythm problems). I found one and am trying to get an appointment. Sadly, it seems like her doctors have given up and are waiting for her to slowly degrade.

I'm so incredibly frustrated and sad! We have another sister (none of us have kids) but I'm the sole caretaker.

This seems like a dumb question, but I'm wondering who orders the generic workup. Did you organize that through the nutritionist or her PCP?