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@tavi

Thinking of you Macbeth -- I'm sorry I don't have anything to share or answers to your questions and know this must be very frightening. Trying to do the best we can in the deep of night can be very lonely and takes a lot of courage. The mix of medications that can be prescribed for our loved ones symptoms is very confusing -- it sounds like there are major changes going on with your husband's meds -- I do hope you have an experienced physician / home health nurse working with you and responding to your concerns. In the past year, my husband has had several different meds prescribed -- finally last October he started on a regime that has worked well the past 3 months. But it was only after I finally found a physician who was focused on elderly dementia and was experienced with the potential med interactions that we were successful. Wishing you courage and a few moments today when you can care for yourself too.

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Replies to "Thinking of you Macbeth -- I'm sorry I don't have anything to share or answers to..."

@tavi

Thank you. I think that's part of the problem - too many doctors in too many places, none very effective or interested, and no gerontologist. I will have to work on that. Thank you for support. It means a lot.

Macbeth

I was able to find a practice here in Portland, Housecall Providers - they come directly to our home and are very responsive via phone. My husband's PCP's average client age is 80.... which means a lot to her experience and knowledge about the issues we are dealing with. It's a great model - not sure if there are similar practices in your area but finding a gerontologist would be a great start.