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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Oct 2 3:09pm | Replies (781)Comment receiving replies
I have missed writing and reading posts. Anitasharma- such wonderful news. I love you were there as the support and that the family is going to be there. I too know take it slow. I felt good, so at times forgot i just had a transplant in the early days. No hair brought me back to life. Keep us posted .
I left last Wednesday for a near week in Vancouver. My 1st flight and trip since my transplant. I did go with a slight tightness feeling in my lungs. It is hard to explain, but the first time i had this feeling was when my friend and i both bought new cars and used our AC's full blast. No fever, but eventually an expectorant was needed to release the phlegm. No fever or any other symptoms, but a cough now and then. My new immune system was hard at work!! I also took their transit system and often had a younger person take the seat next to me who had sniffles!!!
I saw my primary care drs office NP i might have said, and she reminded me I am literally a one-year-old and some months with my new immune system. Cleaning the dirt brought through the bottom of my fence from the 40 plus pigeons that lived next door. Not safe dirt.
Lastly, I bought a refillable bottle that turned out was not cleaned enough. I did not realize it till after a couple days of thinking the Vancouver convention area and hotel water stations water that my funky bottle made the taste funky. I bought a water bottle and refilled it each day. A couple too many delicious pastries, so back to better choices now that i am home.
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Hi Kat! Somehow I missed this reply…need to catch up.
Congratulations on the first air travel since your transplant! Interesting about the reaction to the AC and tightness in your chest. Glad to hear it turned out to be nothing. You’re masking up in the planes and airport, and when playing in the dirt, right? Nudge, nudge or is that nag, nag. 😉
Actually that is something I should touch on…gardening or doing anything with soil, compost, raking, etc., we BMT patients always need to mask up. While we have a new immune system, it will never be as robust as our factory installed version. We will always be susceptible to fungal, bacterial and viral infections. Under-realized are fungal infections. Over the course of a couple years, three people in my local BMT community, disregarded their advisors in respect to not gardening. Two passed away from lung fungal infections and 3rd has chronic lung gvhd now because of his involvement in working with soil. So it’s really important to wear an N-95 mask any time we’re out working in our gardens, using a leaf blower or sweeping. I even wear one in the house when vacuuming. I have a hepa filter vac but I still don’t take chances.
Sounds like you had a great time at the convention! Vancouver is such a gorgeous area! I’m so happy to see that you’re back to a normal life of travel and working full time again. I know you missed that life for the interim. But now you’re back in the saddle and moving on!
Hah, I laughed out loud at “ A couple too many delicious pastries, so back to better choices now that I am home.” Gurl, we’ve all been there! It’s totally acceptable for us to splurge once in a while! We earned every calorie. 😅