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Reading the posts re: communicating with family about spouse's/family member's actual condition. I have been hesitant to do that although I really want to - more for my sake than his. When one nephew calls randomly, my husband just says he's "status quo". When I am asked, I say he's "ok" or "so-so". He doesn't want people to really know what is going on with him. Reality is he is declining health wise and mentally. Not super bad but it sure makes my life with him very difficult. I think family should know. My problem with doing that - when he does talk to people - like family and doctors - he puts on this image of being "fine". Even told one of the doctors a few weeks ago he knows what's going on around him (not really) and he understands his days are not forever. Last time he went to church with me, he looked horrible! He started not doing so well and I wanted to leave but NO! We had to stay. Anyone that looked at him knew he was not well. But he puts on that smile and tries to talk like everything is fine. So I feel if I tell people what is really going on at home where they don't see him, they'll think I'm nuts or just maybe bad-mouthing him. I feel like I'm in a no win situation.

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Replies to "Reading the posts re: communicating with family about spouse's/family member's actual condition. I have been hesitant..."

You really need to be open with folks, you need the support. My husband also said he didn't want me announcing his condition, however I told him I needed the support. I limit who I tell what, depending on circumstances and need to know basis.

@maryb86
Yes yes yes!
We are in a very different place than those who’s loved ones decline regularly over the months. Some dementia can stay status quo for many years, and only those living with them or spending a lot of time with them can see it. I personally have a very hard time handling all of this. I wish i could encourage you, but its been a hard few days for me.