Y90 AND Captem Combo

Posted by laree @laree, Jun 26 12:26am

Pnets KI67 25%. My husband had 3 captems cycles. The last cycle had toxicity and became sick. Anyone experience Y90 procedure for Pnets mets to the liver? I have read many net patients use Captem to shrink tumors for a few cycles. Not sure why the Dr wants to dive into Y90 already. Unless it is because my husband got sick the last cycle of Captem. But didn't use anti nausea meds either, unfortunately. Anyone have good results with Y90 and was successful?

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

laree | @laree | Jul 8 1:22pm

In reply to @lu7 "What does the trial involve? Ive had both Y90 and CAPTEM. Curious about what the trial..." + (show)

Basically a couple of days before the Tem tablets you go in for Y90 treatment at the same time that you are in the Captem cycle. The Y90 is not done during the 2 week break from Captem.

lu7 | @lu7 | Jul 8 2:54pm

In reply to @laree "Basically a couple of days before the Tem tablets you go in for Y90 treatment at..." + (show)

What is the name of the trial? And do you know where it is being done? Thank you! Are you participating?

midford | @midford | Jul 8 4:56pm

In reply to @lindabees "Steve Jobs was originally treated at Stanford (where my husband had his pancreas surgery) but then..." + (show)

I understood that Steve Jobs chose the holistic route first and then eventually did the surgical route or at least took medical advice after a period of time and that he also very much regretted waiting for treatment

laree | @laree | Jul 9 10:02am

In reply to @lu7 "What is the name of the trial? And do you know where it is being done?..." + (show)

Sure! How did Y90 work for you?

laree | @laree | Jul 9 10:05am

In reply to @laree "Sure! How did Y90 work for you?" + (show)

UCSD but I think there are other locations offering it. Our Dr is suggesting it.

lu7 | @lu7 | Jul 9 7:57pm

In reply to @laree "Sure! How did Y90 work for you?" + (show)

I had Y90 radioembolization of one tumor that was growing while others were stable. It was very effective in destroying that tumor. My only side effect was significant fatigue. I continue on CAPTEM protocol.

Turkey, Volunteer Mentor | @tomrennie | Jul 9 8:12pm

In reply to @laree "A lot if times we go to the local mtns for the holiday. But I went..." + (show)

You folks sound active. That is great and helps. You also seem willing to adapt. Unfortunately, that does come in handy. The cancer, the treatment, the mental and emotional side of it are all difficult. How are you coping with them?

Teresa, Volunteer Mentor | @hopeful33250 | Jul 10 6:20am

In reply to @lu7 "What is the name of the trial? And do you know where it is being done?..." + (show)

Hello @lu7,

As you mentioned being interested in a clinical trial, here is a link to the Carcinoid Cancer Foundation website where many different clinical trials are mentioned, https://www.ncf.net/clinical-trials.

I hope you find what you are looking for here!

lu7 | @lu7 | Jul 10 6:53am

In reply to @hopeful33250 "Hello @lu7, As you mentioned being interested in a clinical trial, here is a link to..." + (show)

Thank you. Im not really looking. I know my oncologist is on top of my treatment. But I do like to keep up with new trials and treatments.

zacharycat | @zacharycat | Jul 11 10:29am

In reply to @hopeful33250 "Hello @lu7, As you mentioned being interested in a clinical trial, here is a link to..." + (show)

I bookmarked the page as it looks useful. Contacted one of the trials, don't know if they will respond. Sometimes it seems they only talk to other doctors.