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Intrathecal Pain Pump

Chronic Pain | Last Active: 1 day ago | Replies (132)

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Profile picture for carolynhughes75 @carolynhughes75

Arachnoiditis as a pump related issue may not be as rare as you think. I also have Arachnoiditis related to my pump. After 20 years of having a pump, I finally had it removed.

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Replies to "Arachnoiditis as a pump related issue may not be as rare as you think. I also..."

So nice to connect!

I have had my fourth pump put in and wonder if I should have just had it taking out. I think they talked me out of it because they like the money. I feel like a number with nothing to add after twenty years. Also have lack of trust. So sick of doctors and pain that got worse with surgery then after a pump. So frustrating. Who can you trust and rely on? I’m 70 and feel what’s the use.

@carolynhughes75 How did they determine you had arachnoiditis? How did you handle needing to come down from the meds before having it removed? How soon after having it removed did you start feeling better and did the arachnoiditis heal? Thanks.