Anyone else have a Redundant / Tortuous Colon?
Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.
My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne
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Hi Hana2
Sorry for your allergies and intolerances. How do you manage to eat and stay healthy?
I am curious because my Dx was microscopic colitis and I was told to eat bananas, rice, toast and water. After that, no advice given. No one can live on that!
Margot
Hi Hana2
Me again. Here are some of the foods I can tolerate without diarrhea or problems. I started out with rice, potatoes, chicken, mild fish, and then tried adding new foods to see what would happen. I can now have spaghetti and butter, mild white bread, tuna salad, scrambled eggs, plain yogurt, and I keep adding things one at a time. I hope you can do the same.
Margot
I have a tortuous colon as well. My first and only colonscopy could not even be completed as it was too 'bendy' to get by. Got about 3/4 done. So I was sent for a colongraphy instead. It is done with gas so it could get by the bendy bit. Nothing was found. I haven't done one again but I will be going for colongraphies from now on. I have been a constipated person my whole life. Just had surgery and the bowels nope..not waking back up. They took FOREVER to get going again and now I have taken the time to work on them. So prunes are my friends with black coffee every morning with a 'squatty potty'. It is a stool that I put my feet on to raise my knees up. 5 out of 7 days a week I have a movement now. Nice to not be constipated! A little struggle when I"m not home or when I will be on holiday for days/weeks at a time with the stool. One day at a time! All the best!
I have had done a deep dive into my life long constipation recently! Never really focussed on it. I've learned about all this fiber too people say to have. Never mentioned is the water that needs drank along with it. Made a difference to me tho now I'm eating a handful of prunes on an empty stomach with black coffee and most mornings I have a movement now with my Squatty Potty. Such a good feeling! All the best with this journey. I too am trying to stay away from any meds. Asked my doctor if my body will eventually rely on the prunes...she said I may need to add more to my diet one day but to keep doing what I'm doing while it works well. Just had 1/2 my pancreas removed so working on the diet all round!
I have a tortuous colon and have been getting colonoscopies every 5 years for about 20 years. The first 3 caused no discomfort afterwards. In fact I woke up during the first one and watched part of it on the screen. The last one, with a different doctor, I had severe discomfort for about 2 weeks with cramping and bloating. I just ate a bland diet and it gradually eased. The prep and doctor were the only thing different, don't know if that contributed. Tortuous colons are not uncommon.
Good luck with your procedures
I just had a colonoscopy and found out the same thing. I am a little overwhelmed and wish you the best.
I have a tortuous and redundant colon, and this diet helps me be free from pain and to pass stools regularly: I make protein shakes with fresh veg, fruit, yogurt, and 10 other ingredients that provide protein, fibre, and superfoods. My only indulgence is soft cheese, bread and wine for dinner! But the key for me has been milk of magnesia daily and PEG (polyethylene glycol - used for colonoscopy prep) twice a day. I hope that might help some people.
Unfortunately my colon has been growing over the last 10 years or so, and apart from making me look pregnant, is causing other problems. Has anyone else had that happen?
Same here, diagnosed 3 years ago with colonoscopy.
No obvious issues and am a 66 year old female.
digorydesigns, My redundant colon seems to be getting worse, I assume more twisty, but am not sure at all. Solid food seems to be harder to digest and cause constipation and gas, so I focus on porridges and soups -- lighter fare, like you do. I only have bloat (and not looking pregnant) from gas/stool backup, not from a growing colon. Google says colons don't grow after early adulthood, so I wonder what is causing that distention for you.
Thanks for posting!
I spent several months taking a thick powder shake from a functional dr. The trouble began about midpoint of that time frame-9 years ago. Constipation caused mine to stretch. I was taking 1-2 prunes a day. Slowly added up to six. The functional dr had “no idea”. I just quit everything she had me on- and told her so. Seemed to get my 2-3 x a day back- no constipation issues, but when more thickened material goes through one curved spot, it nudges up against my hip bone causing intense pain. I can mitigate by laying horizontal on the other side. Difficult in a social situation or on a walk or with children.
Currently I’m recently diagnosed with EPI. The meds aren’t working. I’m needing Imodium, which of course thickens….
Sigh …