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New member - 3 years with neuropathy, looking for support

Neuropathy | Last Active: Jul 16 7:40pm | Replies (31)

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@mikes52 Well Mike, seems like many folks on the Connect have offered some excellent advice and as you can see, many on this forum have all forms of PN due to many causes. Unfortunately, most causes are never determined. Not sure if anyone made this suggestion but I would suggest that if you see a neurologist, try to see one that is very familiar with peripheral neuropathy and if possible, try to make an appointment at a teaching hospital. Good luck. Ed

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Replies to "@mikes52 Well Mike, seems like many folks on the Connect have offered some excellent advice and..."

Agree totally about finding a neurologist familiar with neuropathy and willing to explore all avenues of diagnosis. If you have CDIP, then you can get a new medication called Hytrullo, made by Vvygart. This is the large motor axon, demyelating type. Most of us have small motor axon . Keep us informed! I really appreciate all of you who share this dreadful and unpredictable condition.