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Neuroendocrine Tumors (NETs) | Last Active: Nov 29 1:22pm | Replies (429)
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@hopeful33250

@gaylejean That is a good question. I have always thought that the Octreoscan was the best way to track NETs, but I know that other scans have been used as well. Let's see what the other members of our community have to say about that.

@amyh2439 @tresjur @joannem @lucci50 @derekd @gulzar @joanney @jenchaney727@dzerfas @lorettanebraska @wordnoid @trouble and @upblueeyes @ahtaylor @heidilynn4 Please share with us, what types of scans have been used in your situation to track tumors. Teresa

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Replies to "@gaylejean That is a good question. I have always thought that the Octreoscan was the best..."
netpatient | @netpatient | Dec 14, 2021

PET SCAN

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roseflame | @roseflame | Jan 26, 2023

Hi Teresa, I had been having MRI scans every 4-6 months after removal of the primary NET from my small bowel in 2018, but proliferation of metastases to liver and peritoneum caused the docs to switch to the PET in November.

Now they have found spread to sternum, so I started on Lanreotide in December and think it will be all PET scans from now on to check if the drug has succeeded in stopping the spread. Fingers crossed!
Rose

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