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Neuroendocrine Tumors (NETs) | Last Active: Sep 5 7:47am | Replies (383)Comment receiving replies
Yes, every 28 days. I cannot even feel the injection. It was only after I had the Ga68 scan in October that anybody reluctantly admitted I might still have tumors present. The specialist at Iowa said to try the Octreotide–and if it dealt with my symptoms, that gave us our answer!
Replies to "Yes, every 28 days. I cannot even feel the injection. It was only after I had..."
@wordnoid I’m glad that you have found such good treatment. I’ve heard about the doctor in Iowa before.
Hello @wordnoid I get the octreotide shots every 28 days I am a NED but I know that it only means that my tumors have shrunk so much that the O scans cannot see them. My doc said that I should not get carcinoid syndrome any more but I do, but not as often. I know that those little devils are still there and they will probably show if I had a GA68 scan, Right now I am just enjoying my better health