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Neuroendocrine Tumors (NETs) | Last Active: Nov 29 1:22pm | Replies (429)
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@wordnoid

Yes, every 28 days. I cannot even feel the injection. It was only after I had the Ga68 scan in October that anybody reluctantly admitted I might still have tumors present. The specialist at Iowa said to try the Octreotide--and if it dealt with my symptoms, that gave us our answer!

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Replies to "Yes, every 28 days. I cannot even feel the injection. It was only after I had..."
joannem | @joannem | Jan 20, 2017

Hello @wordnoid I get the octreotide shots every 28 days I am a NED but I know that it only means that my tumors have shrunk so much that the O scans cannot see them. My doc said that I should not get carcinoid syndrome any more but I do, but not as often. I know that those little devils are still there and they will probably show if I had a GA68 scan, Right now I am just enjoying my better health

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Teresa, Volunteer Mentor | @hopeful33250 | Jan 20, 2017

@wordnoid I'm glad that you have found such good treatment. I've heard about the doctor in Iowa before.

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